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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
Immunize.org provides resources and information about vaccines for healthcare professionals and the public, focusing on improving vaccination rates and understanding of immunization.
The INADcure Foundation is a nonprofit organization dedicated to funding research and raising awareness for Infantile Neuroaxonal Dystrophy (INAD) and other related neurodegenerative diseases, while providing support to affected families.
INAD Warriors, Inc. is dedicated to raising awareness and funding research for infantile neuroaxonal dystrophy (INAD) and related PLA2G6 gene disorders, while supporting families affected by this ultra-rare disease.
The Indian Health Service provides health care services to American Indians and Alaska Natives, focusing on public health responses and partnerships with tribal organizations.
RDCP:PAG0000118
RDCP:PAG0000119
IndoUSrare is a non-profit organization dedicated to advancing research, advocacy, and collaboration in the field of rare diseases through partnerships between India and the United States.
RDCP:PAG0000120
IndoUSrare is a non-profit organization dedicated to advancing research, advocacy, and collaboration in the field of rare diseases through partnerships between India and the United States.
Infants Remembered In Silence (IRIS) provides support, education, and resources for parents and families dealing with the death of a child in early pregnancy or from various infant and early childhood deaths.
The Infectious Diseases Society of America (IDSA) supports professionals in the field of infectious diseases through research, educational opportunities, and advocacy for better funding and policies.
The Inflammatory Breast Cancer Research Foundation is dedicated to supporting individuals living with inflammatory breast cancer (IBC) by providing knowledge, resources, and fostering patient-focused research.
Infogen provides information to men and women of reproductive age about the prevention of birth defects, promoting healthy habits for the birth of healthy children.
RDCP:PAG0000285
NYU Langone Health focuses on advancing medical education and research to improve patient care, with a particular emphasis on various health conditions and innovative treatments.
RDCP:PAG0000293
A non-profit organization focused on improving the quality of life for individuals affected by 22q11.2 deletion syndrome through family and professional partnerships.
RDCP:PAG0000289
The organization supports families affected by 22q11.2 deletion syndrome by providing resources and information.
The International Alliance of ALS/MND Associations is a global network that supports ALS/MND associations by providing resources and facilitating connections among stakeholders.
This organization provides health, beauty, and wellness advice, along with the latest medical and pharmaceutical news.
IAMAT-FSIMT is dedicated to advancing travel health knowledge and practice by training healthcare practitioners and sharing research in travel medicine.
The International Association for the Study of Pain (IASP) focuses on advancing pain science and improving pain management through global collaboration, education, and advocacy for better treatment and policies.
The International Autoimmune Encephalitis Society (IAES) is a patient-centered organization that provides support and education for individuals affected by Autoimmune Encephalitis, helping them navigate their diagnosis and recovery journey.
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