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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
KidneyUrology.org provides information and solutions related to various health issues, focusing on effective medicines, medical treatments, and natural supplements for conditions such as obesity, hypertension, and sexual health.
Kids With Heart provides support, education, and resources for individuals affected by congenital heart defects.
RDCP:PAG0000130
KIF1A.ORG is a patient-led nonprofit organization dedicated to accelerating research and treatment development for KIF1A-Associated Neurological Disorder (KAND), an ultra-rare and progressive neurodegenerative condition.
RDCP:PAGQA001
The KLS Foundation supports individuals affected by Kleine-Levin Syndrome (KLS) by raising awareness, providing resources, and funding research to find effective treatments and a cure.
The KMT2C Foundation is a patient advocacy group focused on supporting individuals with KMT2C chromosomal abnormalities through clinical research and community engagement.
RDCP:PAG0000131
RDCP:PAG0000132
KrabbeConnect is dedicated to improving care and finding a cure for Krabbe disease through collaboration among patients, advocates, doctors, and researchers, focusing on patient-centered approaches and community support.
RDCP:PAG0000124
K-T Support Group provides support and resources for individuals with Klippel-Trenaunay Syndrome and related conditions, including webinars and clinical practice guidelines.
RDCP:PAG0000133
The LAM Foundation supports individuals facing Lymphangioleiomyomatosis (LAM), a rare disease that primarily affects women, by providing resources, community support, and driving research for better treatments and a cure.
RDCP:PAG0000134
The Laryngeal Cleft Network supports families affected by laryngeal clefts by providing resources, information, and community connections to improve the lives of children born with this condition.
Learning Ally supports individuals with visual impairments and dyslexia by providing accessible educational resources and audiobooks.
The Learning Disabilities Association of America provides support, education, and advocacy for individuals with learning disabilities and their families, offering resources and information to help navigate challenges related to learning disabilities.
The Leiomyosarcoma Support & Direct Research Foundation (LMSDR) supports patients and caregivers affected by leiomyosarcoma (LMS) by providing information, emotional support, and facilitating research for effective treatments.
RDCP:PAG0000135
The LGS Foundation is dedicated to improving the lives of individuals impacted by Lennox-Gastaut Syndrome (LGS) through advancing research, awareness, education, and family support.
The LGS Foundation is dedicated to improving the lives of individuals impacted by Lennox-Gastaut Syndrome (LGS) through advancing research, awareness, education, and family support.
The Les Turner ALS Foundation provides comprehensive care and support for individuals affected by ALS, offering resources, support groups, and advancing research for treatments and cures.
Let's Cure ACC is an international organization dedicated to supporting patients with Adrenal Cancer by providing resources, information, and a community for sharing experiences.
Let Them Hear Foundation focuses on hearing education and access, training doctors and clinicians globally to improve care for individuals with hearing issues.
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