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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
RDCP:PAG0000265
The Lowe Syndrome Association provides resources and support for families affected by Lowe syndrome, uniting families and facilitating research and medical answers.
The Canadian Lung Association supports individuals affected by lung conditions, funds research for new treatments, and advocates for improved lung health policies.
GO2 for Lung Cancer provides support, information, and resources for patients, survivors, and caregivers affected by lung cancer.
LUNGevity Foundation is a nonprofit organization focused on transforming the diagnosis and treatment of lung cancer through research, education, and support services.
Lung Foundation Australia supports individuals affected by lung diseases and lung cancer by providing care, knowledge, and resources, while also funding research for better treatments.
The Lung Transplant Foundation aims to improve the lives of lung transplant patients and their families by providing resources, support, and education throughout the transplant journey.
The Lupus and Allied Diseases Association, Inc. (LADA) provides education, support, and outreach services for individuals affected by lupus and allied diseases, while advocating for awareness and research initiatives.
Lupus Canada is dedicated to transforming the lives of those affected by lupus through research, advocacy, and public awareness initiatives.
The Lupus Foundation of America supports individuals affected by lupus through education, advocacy, and research initiatives, including the RAY® Lupus Registry.
The Lupus Research Alliance is dedicated to accelerating research and finding a cure for lupus through funding and community engagement.
Lupus UK is a national charity that supports individuals with lupus by providing information, resources, medical talks, a helpline, regional support groups, and an online forum.
RDCP:PAG0000298
Lurie Children's provides comprehensive management and multidisciplinary care for children and young adults with 22q11.2 Deletion Syndrome.
LymeDisease.org advocates for quality healthcare for patients with Lyme disease, providing education, resources, and conducting research through their patient registry, MyLymeData.
RDCP:PAG0000139
LGDA supports patients with complex lymphatic anomalies (CLAs) by providing resources, services, and community support to improve their quality of life.
The Lymphatic Education and Research Network (LE&RN) supports individuals affected by lymphedema and lymphatic diseases through education, advocacy, and community engagement.
The Lymphatic Malformation Institute (LMI) is dedicated to accelerating research and finding cures for patients with Complex Lymphatic Anomalies (CLAs) by supporting researchers, medical professionals, and patients through information, networking, and funding.
Wittlinger Therapiezentrum specializes in the treatment of lymphoedema, providing comprehensive care including manual lymph drainage, bandaging, and movement therapy in a supportive environment.
The Lymphedema Education & Awareness Project (LEAP) is a nonprofit organization dedicated to raising awareness and providing education about lymphedema, a chronic disease affecting millions of Americans.
Lymphoma Canada is dedicated to supporting lymphoma patients and their families through advocacy, education, and community resources, while also promoting research for better treatments and a cure.
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