Kisho is an information platform, not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. All content is aggregated from publicly available sources (including ClinicalTrials.gov, PubMed, FDA.gov, and Orphanet) and is provided for informational purposes only. Clinical trial eligibility, treatment decisions, and any health-related actions should always be discussed with a qualified healthcare professional. Kisho does not endorse any specific therapy, organization, or clinical trial. Terms of use · Privacy policy
Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
Alzheimer's Society provides vital support for individuals affected by dementia, offering personalized assistance, expert advice, and a community for those navigating the challenges of the disease.
The American Academy of Allergy, Asthma & Immunology (AAAAI) is a leading membership organization for allergists and immunologists, providing resources and information on allergies, asthma, and immune deficiency disorders.
The American Academy of Audiology supports audiologists and promotes the profession of audiology through advocacy, education, and professional development.
The American Academy of Dermatology is a professional organization that supports dermatologists in the United States, providing resources for education, practice management, and clinical care related to skin, hair, and nail conditions.
The American Academy of Family Physicians (AAFP) supports family medicine by providing education, advocacy, and resources to enhance the practice and profession of family medicine.
The American Academy of Neurology is dedicated to advancing the field of neurology through education, research, and advocacy for individuals affected by neurological diseases and disorders.
The American Academy of Ophthalmology advocates for patients and the public, leads ophthalmic education, supports research, and advances the profession of ophthalmology.
The American Academy of Orthopaedic Surgeons (AAOS) supports orthopaedic surgeons and promotes musculoskeletal health through education, research, and advocacy.
The AAP is dedicated to the health and well-being of all children, providing resources and support for pediatricians and child health professionals globally.
AAPM&R is a professional organization that supports physiatrists and promotes the specialty of physical medicine and rehabilitation through education, advocacy, and resources.
The American Association for Cancer Research (AACR) is dedicated to advancing cancer research and supporting cancer survivors through advocacy, education, and funding for innovative research projects.
The American Association for Geriatric Psychiatry focuses on improving mental health care and wellness for aging adults through education, resources, and community support.
The American Association for Klinefelter Syndrome (AAKSIS) provides education, support, and research for individuals affected by Klinefelter syndrome and its variants, focusing on improving understanding and care for those impacted.
The American Association of Kidney Patients (AAKP) is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, and patient engagement.
The American Association of Neurological Surgeons (AANS) supports neurosurgeons and healthcare professionals by providing educational resources, hosting annual scientific meetings, and promoting advancements in neurological care.
The American Association of the DeafBlind (AADB) is a national consumer organization that advocates for DeafBlind individuals, providing resources and support to enhance communication and access to healthcare services.
The Association for Advancing Tissue and Biologics (AATB) is a non-profit organization dedicated to promoting the safety, quality, and availability of donated human tissue worldwide.
RDCP:PAG0000254
To provide support and information to people with Behçet's Disease and their families and to educate the medical community about Behçet's Disease.
The American Board of Medical Specialties (ABMS) is dedicated to enhancing the quality of patient care by overseeing the certification of physicians and specialists across various medical fields.
The American Board of Psychiatry and Neurology (ABPN) sets certification standards for psychiatrists and neurologists, providing resources for board certification and continuing education.
Run a patient organization? Claim your profile or register a new one.