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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
Mended Hearts is the nation's largest cardiac peer-to-peer support group, providing support to heart patients, their families, and caregivers for various heart diseases.
The Meningitis Foundation of America raises awareness and provides resources to help protect individuals and families from meningitis, a potentially deadly disease.
The Meningitis Research Foundation is dedicated to defeating meningitis through awareness, fundraising, and supporting research efforts, while connecting a global network of organizations and individuals affected by the disease.
Mental Health America is a national nonprofit organization dedicated to promoting mental health, well-being, and condition prevention, providing resources and advocacy for mental health support.
PKAVS supports individuals in Perth & Kinross by providing resources for carers, mental health support, mobility assistance, and community group guidance.
The Mesothelioma Applied Research Foundation is dedicated to ending mesothelioma by funding research, providing treatment support and education for patients and their families, and advocating for federal funding of research.
Metabolic Support UK provides support for individuals living with inherited metabolic disorders, offering one-to-one assistance, community connection, and access to reliable information.
MG Ohio is dedicated to supporting individuals living with myasthenia gravis and related disorders through education, community programs, and advocacy.
The MHE Research Foundation supports individuals affected by Multiple Hereditary Exostoses and Multiple Osteochondroma, providing resources and information related to these conditions.
The Miller School of Medicine focuses on medical education and research, particularly in areas such as diabetes, cancer care, and precision medicine, while also providing community outreach and patient care services.
RDCP:PAG0000281
MACS is a charity that supports children and adults born with Microphthalmia, Anophthalmia, or Coloboma, providing peer support, practical help, and opportunities for life-changing activities.
Mila's Miracle Foundation advocates for children suffering from genetic diseases like Batten disease and aims to develop individualized medicines to provide them with a second chance at life.
Mission: Cure is a nonprofit organization focused on finding effective treatments and a cure for pancreatitis, a painful disease affecting both children and adults, by collaborating with patients, caregivers, and medical experts.
RDCP:PAG0000148
Mission MSA is dedicated to supporting individuals affected by Multiple System Atrophy (MSA) through community building, resources for managing symptoms, and advocacy for research and clinical trials.
RDCP:PAG0000149
MitoAction is dedicated to improving the quality of life for individuals and families affected by mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
RDCP:PAG0000150
The MLD Foundation supports and empowers families living with Metachromatic Leukodystrophy (MLD) through community support, awareness initiatives, research collaboration, and educational resources.
MND Scotland is dedicated to supporting individuals affected by motor neuron disease (MND) through research funding, advocacy, and community events.
MIUSA empowers people with disabilities around the world to achieve their human rights through international exchange and international development.
RDCP:PAG0000151
The Moebius Syndrome Foundation supports individuals with Moebius syndrome by providing resources, funding research, and hosting conferences to build community and awareness.
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