Kisho is an information platform, not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. All content is aggregated from publicly available sources (including ClinicalTrials.gov, PubMed, FDA.gov, and Orphanet) and is provided for informational purposes only. Clinical trial eligibility, treatment decisions, and any health-related actions should always be discussed with a qualified healthcare professional. Kisho does not endorse any specific therapy, organization, or clinical trial. Terms of use · Privacy policy
Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
Muscular Dystrophy Ireland provides support and information to individuals with neuromuscular conditions and their families, advocating for services and entitlements while promoting awareness and research.
The Musella Foundation provides information and support for brain tumor patients, focusing on treatment options and clinical trials.
RDCP:PAG0000157
The MVA Society is dedicated to supporting individuals affected by Mosaic Variegated Aneuploidy (MVA) syndrome through funding research and building a community for patients and their families.
RDCP:PAG0000158
The Myasthenia Gravis Foundation of America is the largest patient advocacy organization focused on myasthenia gravis, providing support and resources for individuals living with this autoimmune neuromuscular disorder.
Myelin Magazine provides breaking news about the latest discoveries in neuroscience, brain health, and technology.
The MDS Foundation is a global nonprofit organization that supports patients, families, and healthcare providers affected by Myelodysplastic Syndromes (MDS) and related diseases, providing resources, education, and advocacy.
myFace supports the craniofacial difference community by providing resources, education, and comprehensive care to patients and their families, helping them navigate their journeys and embrace their unique beauty.
RDCP:PAG0000159
Myhre Syndrome Foundation is a patient advocacy organization dedicated to providing hope and improving the lives of those impacted by Myhre syndrome, fostering collaboration to advance research and support the community.
RDCP:PAG0000160
The Myocarditis Foundation raises awareness and funds research for myocarditis, a condition that causes inflammation of the heart, affecting thousands each year and leading to sudden death.
RDCP:PAG0000161
Myositis Support and Understanding (MSU) is a nonprofit organization dedicated to supporting patients and caregivers affected by myositis, a group of rare immune-mediated muscle diseases, through education, advocacy, and financial assistance programs.
Myositis UK is a national charity that provides information and support to individuals affected by myositis and funds research to enhance diagnosis and treatment.
Hospital for Special Surgery specializes in orthopedic and rheumatology care, providing services such as physical therapy and patient management through their MyHSS platform.
RDCP:PAG0000162
The Myotonic Dystrophy Foundation supports individuals affected by myotonic dystrophy through advocacy, research funding, and educational resources.
Myotubular Trust supports individuals affected by Myotubular and Centronuclear Myopathy by funding research for treatments and providing resources and shared experiences to empower patients and their families.
Nail Patella Syndrome Worldwide is the official organization of the NPS Community, supporting individuals affected by Nail Patella Syndrome, a hereditary condition characterized by various physical abnormalities and associated health issues.
Naitbabies is a patient advocacy organization focused on fetal and neonatal alloimmune thrombocytopenia (FNAIT), providing support and resources for affected families and promoting awareness and research about the condition.
RDCP:PAG0000163
The Narcolepsy Network provides benefits and services for individuals living with Narcolepsy and Idiopathic Hypersomnia, including educational resources, support groups, and clinical information.
The Nathaniel Adamczyk Foundation is dedicated to preventing common childhood infections from progressing to Acute Respiratory Distress Syndrome in children.
The National Adrenal Diseases Foundation (NADF) supports individuals affected by adrenal diseases such as Addison's disease and Cushing's syndrome, providing education, resources, and advocacy for patients and their families.
NAMI is the National Alliance on Mental Illness, the nation's largest grassroots mental health organization dedicated to providing support, education, and advocacy for individuals affected by mental illness.
Run a patient organization? Claim your profile or register a new one.