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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
The National Alopecia Areata Foundation (NAAF) supports individuals affected by alopecia areata through advocacy, education, and community engagement, while also funding research for treatments.
The National Axial Spondyloarthritis Society supports individuals living with axial spondyloarthritis (axial SpA) by providing resources, community engagement, and fundraising initiatives.
The National Aphasia Association supports individuals affected by aphasia, providing resources, community support, and information to help them navigate communication challenges.
Crohn's & Colitis UK is dedicated to supporting individuals living with Crohn's disease and ulcerative colitis by providing information, resources, and community support to help them live well with these conditions.
The National Association For Continence provides education and support for patients and caregivers dealing with incontinence, a treatable medical condition affecting bladder and bowel health.
NADD is an organization that supports individuals with intellectual and developmental disabilities and co-occurring mental health conditions through various programs, publications, and conferences.
The National Association of Laryngectomee Clubs provides services and support to laryngectomees and their families, offering information and resources related to laryngectomy.
The National Association of State Mental Health Program Directors (NASMHPD) represents the public mental health service delivery system in the U.S., providing support and resources for state mental health authorities.
The NAD is the nation's premier civil rights organization for deaf and hard-of-hearing individuals in the United States, advocating for their rights and providing support services.
The National Bleeding Disorders Foundation is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy.
The National Blood Clot Alliance is a nonprofit organization dedicated to advancing the prevention, early diagnosis, and treatment of life-threatening blood clots, including deep vein thrombosis and pulmonary embolism, through public awareness and education.
The National Board for Respiratory Care (NBRC) supports respiratory therapists by providing credentialing and specialty certifications, ensuring high standards of care in respiratory therapy.
The National Bone Marrow Transplant Link (nbmtLINK) provides support and resources for patients, caregivers, and families dealing with the challenges of bone marrow and stem cell transplants, including chronic graft versus host disease.
The National Brain Tumor Society supports individuals affected by brain tumors through personalized navigation, advocacy for research funding, and community-building events.
The National Breast Cancer Coalition advocates for breast cancer research and policy change, aiming to end breast cancer through education, training, and public policy initiatives.
The National Captioning Institute provides captioning, subtitling, and audio description services to support individuals who are deaf or hard of hearing, enhancing their access to auditory and visual information.
The National Center for Learning Disabilities advocates for equitable policies and supports individuals with learning disabilities through research and community engagement.
The National Center on Deafblindness (NCDB) supports state projects for children and youth who are deafblind, providing resources and training to educators and families to improve educational outcomes and quality of life.
The National Cervical Cancer Coalition (NCCC) is a nonprofit organization that provides information and support for individuals and families affected by cervical cancer and HPV disease, focusing on education, prevention, and advocacy.
The National CFIDS Foundation is dedicated to funding research and providing information, education, and support for individuals affected by chronic fatigue and immune dysfunction syndrome (CFIDS).
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