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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
Dank Cannabis is a Calgary-based dispensary that offers a wide range of high-quality cannabis products, including flowers, edibles, concentrates, and accessories, while fostering a community spirit among cannabis users.
Nevada PEP is dedicated to supporting families of children with disabilities by providing education, empowerment, and resources to enhance their opportunities for success in home, community, and school.
The Nevus Network is a support group for individuals and families affected by congenital nevi and Neurocutaneous Melanosis, providing educational materials, emotional support, and connections among members.
Nevus Outreach, Inc. provides support and information for parents of children with large congenital melanocytic nevi, helping them make informed decisions about their child's care.
The New England Hemophilia Association supports individuals with inherited bleeding disorders and their families through education, advocacy, and community-building programs.
New Horizons Un-Limited Inc. provides access to information and life experiences for people impacted by lifelong disability.
Newlife the Charity supports disabled and terminally ill children in the UK by providing essential equipment and services, including emergency loans and family support.
RDCP:PAG0000167
Next Generation of Cystinosis is an organization run by and for adult patients living with cystinosis, providing support and community for those affected.
RDCP:PAG0000168
NF2 BioSolutions is a non-profit organization dedicated to finding a cure or preventative treatment for Neurofibromatosis Type 2 (NF2) by supporting and advancing biomedical technologies, including gene therapy and immunotherapy.
The NICER Foundation provides financial assistance to individuals with narcolepsy facing sudden financial crises and works to improve the lives of people with narcolepsy through advocacy and education.
The University of Maryland, Baltimore is dedicated to excellence in education, research, clinical care, and service, focusing on various health-related fields and community engagement.
The National Heart, Lung, and Blood Institute (NHLBI) leads research, training, and education programs focused on the prevention and treatment of heart, lung, and blood disorders.
The National Center for Complementary and Integrative Health (NCCIH) conducts and supports research and provides information about complementary health products and practices in the context of whole person health.
The National Institute of Allergy and Infectious Diseases (NIAID) conducts research to advance the understanding, diagnosis, treatment, and prevention of infectious, immunologic, and allergic diseases.
The National Institute on Drug Abuse (NIDA) supports scientific research on drug use and addiction, focusing on prevention, treatment, and harm reduction strategies.
Noah's Hope is dedicated to supporting children and families affected by CLN2 Batten disease through research, advocacy, and fundraising efforts aimed at developing therapies to delay symptoms.
The Menopause Society is dedicated to empowering healthcare professionals to improve the health of women during the menopause transition and beyond, providing evidence-based resources and education.
RDCP:PAG0000280
RDCP:PAG0000257
Northwest Parkinson's Foundation provides support, education, and advocacy for individuals living with Parkinson's disease in the Northwest region, offering free programs and services to enhance their quality of life.
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