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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
Our Odyssey connects young adults impacted by rare or chronic conditions through accessible and inclusive social experiences.
Ovacome is the UK’s ovarian cancer support charity, providing personalized support and information to individuals affected by ovarian cancer since 1996.
The Oxalosis and Hyperoxaluria Foundation (OHF) supports individuals affected by hyperoxaluria through care, education, and research initiatives aimed at finding a cure.
This organization provides personalized chronic pain management solutions, including therapies like spinal cord stimulation and radiofrequency ablation, to help individuals manage various types of chronic pain.
Pancreatica.org is dedicated to advancing research, enhancing early detection, and improving outcomes for pancreatic cancer patients, while providing support and advocacy for patients and families affected by the disease.
The Pancreatic Cancer Action Network provides support, resources, and advocacy for individuals affected by pancreatic cancer, focusing on advancing research and improving patient outcomes.
Pancreatitis UK is a self-help organization providing information about pancreatitis to patients, families, and medical professionals.
Paradigm Healthcare Services simplifies Medicaid billing for school health programs, providing personalized support and technology solutions to enhance claiming processes for healthier communities.
Paralyzed Veterans of America advocates for veterans with spinal cord injuries and diseases, providing support and services to help them live with dignity and independence.
RDCP:PAG0000010
Parent Project Muscular Dystrophy's mission is to end Duchenne muscular dystrophy.
Parents Anonymous provides support and guidance to parents, children, and youth through programs aimed at improving parenting, promoting well-being, and reducing substance use.
RDCP:PAG0000174
Parents of Vision Impaired NZ (PVI) supports and empowers parents and whānau of children with vision impairments through advocacy, resources, and community engagement.
Parent to Parent provides lifelong support for families of disabled, neurodivergent, and health-impaired individuals in New Zealand through information, workshops, and local support groups.
RDCP:PAG0000175
The Parry Romberg Foundation supports patients and their families affected by Parry Romberg Syndrome by providing knowledge, resources, and opportunities for fundraising and research.
Pathfinder Services of North Dakota is a nonprofit organization that provides resources and support for individuals aged birth-26 with learning differences or challenges, focusing on education and community assistance.
PATH - Parents Available to Help, Inc provides resources, support, and information to families of children with special needs in Connecticut and beyond, offering services from prenatal to transition to adulthood.
Pathways.org is dedicated to maximizing early childhood development by providing free resources and information to parents and healthcare professionals to identify and support developmental delays in babies.
RDCP:PAG0000255
The Patient Empowerment Network (PEN) provides trusted information and resources to empower individuals impacted by cancer, focusing on health equity, health literacy, and shared decision-making.
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