Kisho is an information platform, not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. All content is aggregated from publicly available sources (including ClinicalTrials.gov, PubMed, FDA.gov, and Orphanet) and is provided for informational purposes only. Clinical trial eligibility, treatment decisions, and any health-related actions should always be discussed with a qualified healthcare professional. Kisho does not endorse any specific therapy, organization, or clinical trial. Terms of use · Privacy policy
Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
The Arthritis Foundation supports individuals affected by arthritis through resources, research, and advocacy efforts aimed at conquering the disease.
The American Kidney Fund is dedicated to fighting kidney disease through prevention, research, treatment, and support for patients and their families.
Hope Rises International provides medical care and spiritual support to individuals suffering from neglected tropical diseases, focusing on transforming lives through faith and community partnerships.
The American Medical Association advocates for physicians and patients, focusing on issues such as health policy, physician-led care, and reducing physician burnout.
The American Medical Women’s Association (AMWA) is dedicated to advancing women in medicine and improving women’s health through advocacy, leadership development, and community support.
The American Migraine Foundation provides free educational resources and support for individuals living with migraine, aiming to raise awareness and improve advocacy for this disabling neurological disease.
Global Management Partners (GMP) provides high-quality management services to non-profit organizations worldwide, focusing on enhancing member engagement, financial management, and operational efficiency.
The American Nystagmus Network is dedicated to improving the quality of life for individuals and families affected by nystagmus through community support, education, public awareness, and research.
AOSSM is a professional organization that supports orthopaedic surgeons specializing in sports medicine by providing education, resources, and advocacy to enhance patient care.
null
The American Partnership for Eosinophilic Disorders (APFED) supports individuals affected by eosinophilic disorders through education, advocacy, and research initiatives.
The Academic Pediatric Association supports the career development of child health professionals through research, advocacy, and educational scholarship, focusing on enhancing the health and well-being of vulnerable populations.
The American Porphyria Foundation supports individuals and families impacted by Porphyria through education, advocacy, support services, and research for prevention, treatment, and cure.
The American Printing House (APH) empowers individuals who are blind or low vision by providing innovative products, educational resources, and support services to enhance their independence and access to education.
The American Psychoanalytic Association supports psychoanalysis and psychoanalytic education, providing resources and advocacy for mental health professionals and the public.
The American SIDS Institute focuses on research to identify medical vulnerabilities that contribute to sudden infant death syndrome and aims to eliminate the major causes of these deaths.
The American Skin Association works to defeat melanoma and other serious forms of skin disease by advancing research, raising public awareness, and championing good skin health, particularly among children.
SleepApnea.org is dedicated to providing information and resources for individuals affected by sleep apnea, including treatment options and support for managing the condition.
The American Society for Deaf Children supports parents of children who are Deaf and Hard-of-Hearing by providing resources, advocacy, and community engagement to ensure full language access and communication opportunities.
The American Society for Dermatologic Surgery (ASDS) supports dermatologic surgeons in providing expertise for skin health and beauty, focusing on both cosmetic and reconstructive procedures for various skin conditions.
Run a patient organization? Claim your profile or register a new one.