The MOG Project is dedicated to raising awareness and providing education about Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD), while also supporting patients, caregivers, and researchers in the community.

The Rory Belle Foundation supports families affected by NARS1 disorder by connecting them with researchers and clinicians, advocating for research, and working towards treatments and cures.

The RYR-1 Foundation is a non-profit organization dedicated to advocating for and supporting individuals and families affected by RYR-1-Related Diseases (RYR-1-RD) through research funding, awareness, and community building.

The SPATA Foundation is a patient organization dedicated to serving families affected by SPATA5 and SPATA5L1 Related Disorders, which are rare genetic disorders characterized by epilepsy, hearing loss, and developmental delays.

The TBCK Foundation is dedicated to serving families impacted by TBCK Syndrome through patient-led research, advocacy, education, and support.

The UGDH Foundation is dedicated to supporting families affected by Jamuar syndrome, a rare genetic disorder, by facilitating scientific collaboration to improve treatments and find a cure.

The Visual Snow Initiative is a nonprofit organization dedicated to raising awareness, providing education, and supporting research for Visual Snow Syndrome, a neurological condition that affects vision and quality of life.

The Wiedemann-Steiner Syndrome (WSS) Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS, a rare genetic disorder.

The Wolverine Foundation is dedicated to advancing research and treatment for the MAPK8IP3 genetic mutation and related central nervous system disorders through educational initiatives and support for affected individuals.

Think First National Injury Prevention Foundation is dedicated to preventing brain, spinal cord, and other injuries through education, research, and advocacy, focusing on safety measures to reduce risks associated with traumatic injuries.

Empowering those living with genetic conditions and their providers.

Empowering those living with genetic conditions and their providers.

Thisbe & Noah promotes research, awareness, and support for children with neurological diseases.

Through the Looking Glass provides services and support for families with disabilities, focusing on adaptive baby care and early childhood education for children with disabilities.

ThyCa is a nonprofit organization that supports and educates the global thyroid cancer community, providing resources and services for patients, caregivers, and healthcare professionals.

The Timothy Syndrome Alliance supports individuals and families affected by CACNA1C-Related Disorders, including Timothy Syndrome, by building a knowledge hub, improving diagnosis, and driving research efforts.

The TMJ Association is a patient advocacy organization dedicated to improving the understanding and treatment of Temporomandibular Disorders (TMD) through education, research, and support for patients.

Together for Short Lives supports families caring for seriously ill children by providing emotional, practical, and financial assistance, as well as advocating for improved palliative care services.

The Tom Wahlig Stiftung supports research and provides advice for individuals affected by Hereditary Spastic Paraplegia (HSP), a rare and incurable genetic disease that often begins in childhood and progressively worsens.

Two Rhythms is an accessible arts charity that provides music and movement therapy programs for people with profound disabilities, promoting health and wellbeing through creative expression.