Connect with patient groups who understand your journey
Find Your Community
Connect with organizations that understand your journey.
Trusted Organizations
Each group is verified to help you connect with confidence.
Always Findable
Organizations keep their identity even when websites change.
Search by your condition, organization name, or location
UTMB is a medical institution focused on patient care, education, and research, serving communities in Texas and beyond.
RDCP:PAG0000235
Uplifting Athletes connects athletes, teams, and organizations with individuals and families impacted by rare diseases, focusing on research, awareness, and creating enriching experiences.
The Usher III Initiative is dedicated to finding cures for Usher 3 Syndrome, a rare inherited disease that leads to progressive vision and hearing loss.
RDCP:PAG0000236
The Usher Syndrome Coalition is dedicated to supporting individuals and families affected by Usher syndrome, raising awareness, and accelerating research for potential treatments.
RDCP:PAG0000239
The VHL Alliance works to improve the quality of life and health outcomes for patients with Von Hippel-Lindau (VHL) disease through community building, education, treatment options, and advancements in medical research.
VISIONS/Services for the Blind and Visually Impaired is a nonprofit organization that provides vision rehabilitation and social services to assist individuals who are blind and visually impaired in leading independent lives.
VOR is a non-profit organization advocating for individuals with intellectual and developmental disabilities (I/DD) and autism, ensuring they and their families can make informed choices regarding residential and employment options.
Vaincre les Maladies Lysosomales is a French patient advocacy organization focused on supporting individuals and families affected by lysosomal diseases through research funding, patient support, and community engagement.
RDCP:PAG0000237
The Vasculitis Foundation provides education, research, and support for individuals affected by vasculitis, a group of rare diseases characterized by inflammation of blood vessels.
Vermont Legal Aid provides free legal assistance to low-income residents facing civil legal issues, including eviction, foreclosure, health care, discrimination, and more.
RDCP:PAG0000238
The Vestibular Disorders Association (VeDA) provides support and resources for individuals affected by vestibular disorders, focusing on education, community support, and coping strategies.
The Vision of Children Foundation is dedicated to funding research to cure hereditary childhood blindness and genetic vision disorders while providing support to affected families.
Vitiligo Support International Inc. (VSI) is a nonprofit organization that provides education, research, and awareness resources for individuals affected by vitiligo.
RDCP:PAG0000241
Ward's Foundation empowers families to manage the emotional and practical challenges that arise after a child is diagnosed with a rare disease, providing holistic support and resources.
RDCP:PAG0000240
Wake Up Narcolepsy is a nonprofit organization dedicated to raising awareness, providing support, and advancing research for Narcolepsy, aiming for improved treatments and a cure.
RDCP:PAG0000242
wAIHA Warriors is a patient advocacy organization focused on educating and supporting individuals affected by wAIHA (Warm Autoimmune Hemolytic Anemia) through resources, webinars, and legislative advocacy.
The Washington State Department of Social and Health Services provides a range of services to assist individuals and families, including food, cash, medical assistance, and support for those with disabilities.
Kindering provides education and therapies for children with diverse abilities and their families, focusing on developmental support for children experiencing disabilities and delays.
Well Spouse Association provides support and resources to individuals who care for partners with chronic illness or disability, offering peer support groups, events, and advocacy.
West Central Missouri Community Action Agency provides essential services to support families in need, including food assistance, childcare, and community development programs.
Join our directory to help patients and families find you. Registration is free and takes just a few minutes.