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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
Vitiligo Support International Inc. (VSI) is a nonprofit organization that provides education, research, and awareness resources for individuals affected by vitiligo.
VOR is a non-profit organization advocating for individuals with intellectual and developmental disabilities (I/DD) and autism, ensuring they and their families can make informed choices regarding residential and employment options.
RDCP:PAG0000240
Wake Up Narcolepsy is a nonprofit organization dedicated to raising awareness, providing support, and advancing research for Narcolepsy, aiming for improved treatments and a cure.
RDCP:PAG0000241
Ward's Foundation empowers families to manage the emotional and practical challenges that arise after a child is diagnosed with a rare disease, providing holistic support and resources.
RDCP:PAG0000242
wAIHA Warriors is a patient advocacy organization focused on educating and supporting individuals affected by wAIHA (Warm Autoimmune Hemolytic Anemia) through resources, webinars, and legislative advocacy.
The Washington State Department of Social and Health Services provides a range of services to assist individuals and families, including food, cash, medical assistance, and support for those with disabilities.
Kindering provides education and therapies for children with diverse abilities and their families, focusing on developmental support for children experiencing disabilities and delays.
Well Spouse Association provides support and resources to individuals who care for partners with chronic illness or disability, offering peer support groups, events, and advocacy.
West Central Missouri Community Action Agency provides essential services to support families in need, including food assistance, childcare, and community development programs.
Westchester Jewish Community Services (WJCS) provides a range of programs and services to support individuals and families in Westchester, focusing on mental health, substance use, disabilities, and community support.
RDCP:PAG0000243
The Wilhelm Foundation aims to ensure that individuals with undiagnosed diseases receive prompt and accurate diagnoses, while advancing medical research and collaborative efforts to uncover the causes of these conditions.
RDCP:PAG0000244
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The Wilson Disease Association provides support and resources for individuals affected by Wilson disease, an inherited disorder that leads to copper accumulation in the body.
Wings of Hope is a global humanitarian nonprofit organization that provides free medical air transport for patients needing specialized care, focusing on children with rare and life-threatening conditions.
The Wolf Hirschhorn Syndrome Trust (WHST) is a registered charity that supports individuals affected by Wolf Hirschhorn Syndrome, providing information and promoting awareness of this rare genetic disorder.
Wolfram Syndrome UK is a charity that provides support and information for individuals and families affected by Wolfram Syndrome, while also funding research and raising awareness about the condition.
WonderBaby.org provides resources and support for parents of children with special needs, focusing on developmental milestones, health, nutrition, and advocacy.
WAPO is a non-profit organization focused on improving diagnosis, treatment, and care for pituitary and adrenal patients worldwide.
The World Federation of Hemophilia (WFH) is dedicated to improving the lives of people with inherited bleeding disorders, providing resources, advocacy, and support for treatment and care.
The Xeroderma Pigmentosum Society supports individuals with Xeroderma Pigmentosum (XP), a rare disease causing extreme sensitivity to sunlight, by providing resources, education, and a unique night camp experience for affected families.
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