Connect with patient groups who understand your journey
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Connect with organizations that understand your journey.
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Westchester Jewish Community Services (WJCS) provides a range of programs and services to support individuals and families in Westchester, focusing on mental health, substance use, disabilities, and community support.
RDCP:PAG0000243
The Wilhelm Foundation aims to ensure that individuals with undiagnosed diseases receive prompt and accurate diagnoses, while advancing medical research and collaborative efforts to uncover the causes of these conditions.
RDCP:PAG0000244
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The Wilson Disease Association provides support and resources for individuals affected by Wilson disease, an inherited disorder that leads to copper accumulation in the body.
Wings of Hope is a global humanitarian nonprofit organization that provides free medical air transport for patients needing specialized care, focusing on children with rare and life-threatening conditions.
The Wolf Hirschhorn Syndrome Trust (WHST) is a registered charity that supports individuals affected by Wolf Hirschhorn Syndrome, providing information and promoting awareness of this rare genetic disorder.
Wolfram Syndrome UK is a charity that provides support and information for individuals and families affected by Wolfram Syndrome, while also funding research and raising awareness about the condition.
WonderBaby.org provides resources and support for parents of children with special needs, focusing on developmental milestones, health, nutrition, and advocacy.
WAPO is a non-profit organization focused on improving diagnosis, treatment, and care for pituitary and adrenal patients worldwide.
The World Federation of Hemophilia (WFH) is dedicated to improving the lives of people with inherited bleeding disorders, providing resources, advocacy, and support for treatment and care.
RDCP:PAG0000246
The XLH Network is a patient support organization for individuals living with X-Linked Hypophosphatemia (XLH), focusing on awareness, education, and community support.
RDCP:PAG0000247
The XLID98 Foundation supports individuals affected by the ultra-rare neurodevelopmental condition XLID98, also known as NEXMIF, KIAA2022, and KIDLIA, and aims to promote awareness and research for treatment.
The XLP Research Trust supports families affected by X-Linked Lymphoproliferative disease and funds research into XLP1 and XIAP.
The Xeroderma Pigmentosum Society supports individuals with Xeroderma Pigmentosum (XP), a rare disease causing extreme sensitivity to sunlight, by providing resources, education, and a unique night camp experience for affected families.
RDCP:PAG0000245
The YWHAG Research Foundation raises awareness and educates the public about the YWHAG genetic mutation, supporting families affected by this rare neurological disorder.
RDCP:PAG0000248
The ZMYND11 Treatment Foundation focuses on supporting families affected by the rare ZMYND11 gene disorder and aims to find treatments to improve the function of the ZMYND11 protein and alleviate symptoms.
ZERO TO THREE is dedicated to promoting the healthy development of infants and toddlers through research-based resources, training, and advocacy for policies that support early childhood education and well-being.
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