cureCADASIL is a nonprofit organization dedicated to uniting CADASIL patients and the medical community to advance research, treatments, and ultimately a cure for CADASIL, a rare inherited cerebrovascular disease.

flok is a patient advocacy organization focused on improving care and research for individuals managing inherited disorders of protein metabolism, such as PKU, HCU, and MSUD, by combining patient-reported data with clinical and genetic records.

Goldenhar UK supports individuals and families affected by Goldenhar syndrome and craniofacial microsomia by providing advice, resources, and a community to improve their quality of life.

Changing Faces is a charity that provides support and promotes respect for individuals with visible differences, offering services like emotional support and skin camouflage advice.

北京爱稀客肺动脉高压罕见病关爱中心 is a public organization that provides support and assistance to patients with pulmonary arterial hypertension in China, focusing on improving their quality of life and raising awareness about rare diseases.