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Search 1,288 verified patient advocacy organizations — the community, research advocates, and family-support groups working on rare diseases.
Kisho provides public health information only — not medical advice. Always consult your healthcare provider.
The American Society for Experimental Neurotherapeutics (ASENT) is a non-profit organization focused on advancing the development of therapies for neurological disorders through scientific exchange, education, and training.
The American Society for Gastrointestinal Endoscopy (ASGE) supports gastrointestinal specialists by providing clinical education, practice support, and resources to enhance quality and safety in endoscopy.
The American Society for Reproductive Medicine (ASRM) is dedicated to advancing the science and practice of reproductive medicine through education, research, and advocacy for patients and healthcare providers.
The American Society of Andrology supports research and education in andrology, focusing on the male reproductive system and sexual health.
The American Society of Anesthesiologists (ASA) supports anesthesiologists through education, advocacy, and resources to improve patient care and safety in anesthesia.
The ASHG is a professional organization that supports human genetics and genomics research, providing a platform for scientific exchange, networking, and career advancement for genetics professionals.
The American Society of Nephrology (ASN) is dedicated to improving kidney health through education, advocacy, and research, supporting kidney health professionals and patients affected by kidney diseases.
ASPEN is dedicated to improving patient care through the advancement of clinical nutrition and metabolism, focusing on diseases related to malnutrition and providing resources for healthcare professionals.
The American Society of Plastic Surgeons supports patients seeking cosmetic and reconstructive surgery by providing resources, information, and a community for patients to connect with board-certified plastic surgeons.
The American Society of Tropical Medicine and Hygiene (ASTMH) is a global health community focused on reducing the burden of infectious diseases and improving global health through professional development and scientific collaboration.
The American Speech-Language-Hearing Association (ASHA) is a professional association that supports audiologists and speech-language pathologists, providing resources, advocacy, and education to improve communication access for individuals with speech, language, and hearing disorders.
Shepherd Center provides specialized rehabilitation services for patients with spinal cord injuries, brain injuries, strokes, multiple trauma, multiple sclerosis, and chronic pain, focusing on recovery and support.
The American Thoracic Society improves global health by advancing research, patient care, and public health in pulmonary disease, critical illness, and sleep disorders.
The American Urological Association (AUA) supports urologists and patients by providing educational resources, hosting annual meetings, and promoting advancements in urology care.
The American Vitiligo Research Foundation (AVRF) focuses on raising awareness and providing education about vitiligo, particularly for children and their families, while supporting research for a cure.
AmeriFace is a nonprofit organization that provides support and resources for individuals with cleft and craniofacial conditions, focusing on education, advocacy, and community outreach.
The AFE Foundation provides support, education, and research for families and healthcare providers affected by amniotic fluid embolism (AFE).
The Amyloidosis Foundation supports individuals affected by amyloidosis through education, awareness, and resources related to diagnosis and treatment.
RDCP:PAG0000019
The Amyloidosis Research Consortium provides support, information, and resources for patients and caregivers affected by amyloidosis, helping them access the best care possible.
Amyloidosis Support Groups provides resources and support for individuals affected by amyloidosis, including treatment information and access to support groups.
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