Dermatomyositis in an adult.
Comprehensive, easy-to-understand information about this condition
How we create this content →Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
The limited documentation surrounding adult dermatomyositis can be frustrating. This condition affects a small population, which restricts the ability to conduct large-scale clinical studies. Additionally, the lack of identified genetic markers and consistent clinical features complicates the understanding and characterization of the disease.
To navigate adult dermatomyositis, consider consulting a rheumatologist with experience in autoimmune diseases. They can provide specialized care and management strategies. Additionally, explore resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org, which offers information and support for patients. Participating in clinical trials may also provide access to cutting-edge treatments. Keep an eye on ongoing research and consider asking about registry opportunities to contribute to the understanding of this condition.
Currently, there are several orphan drugs designated for adult dermatomyositis, including begelomab and lenabasum, which are in various stages of development. Additionally, there are 68 active clinical trials exploring new treatment options and management strategies for this condition. You can find more information on these trials at ClinicalTrials.gov: https://clinicaltrials.gov/search?cond=adult%20dermatomyositis.
Actionable guidance for navigating care for adult dermatomyositis
To navigate adult dermatomyositis, consider consulting a rheumatologist with experience in autoimmune diseases. They can provide specialized care and management strategies. Additionally, explore resources such as the National Organization for Rare Disorders (NORD) at rarediseases.org, which offers information and support for patients. Participating in clinical trials may also provide access to cutting-edge treatments. Keep an eye on ongoing research and consider asking about registry opportunities to contribute to the understanding of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 1 company has orphan drug designations for this disease
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.