alopecia, isolated - Symptoms, Causes & Research | Kisho | Kisho

alopecia, isolated

Rare Disease

MONDO:0000005

Genes

Clinical Trials

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Newborn Screening

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Patient Groups

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Patient-Friendly Information

Comprehensive, easy-to-understand information about this condition

How we create this content →

Last reviewed: Feb 2026

Evidence base: Early

Associated Genes

1 gene

Gene data from HGNC • Click to view on NCBI Gene

Associated Genes

1 gene

Gene data from HGNC • Click to view on NCBI Gene

Overview

Limited structured data is available for this condition. Information continues to be gathered as research progresses.(2 data sources · Data coverage: Limited)

Overview

Alopecia, isolated is an extremely rare condition. Because few cases have been documented, detailed clinical information is limited.

Symptoms & Signs

Currently, there are no known associated genes or inheritance patterns documented for alopecia, isolated. There are also no known symptoms or orphan drug designations available for this condition.

Prognosis & Outlook

Patients and caregivers are encouraged to seek consultation with specialists experienced in rare hair loss conditions. Connecting with rare disease registries such as NORD or Orphanet may provide additional resources and support. Engaging with online patient communities can also facilitate connections with others who may share similar experiences.

Quick Resources

Helpful links for rare disease information and support

GARD (Genetic and Rare Diseases Information Center)NORD (National Organization for Rare Disorders)Find a Genetic Counselor

General Questions to Consider

Questions that may be helpful when speaking with your healthcare team

•Are there specialists or centers of excellence with experience in this condition?
•Is there a patient registry I could participate in?
•Should my family members consider genetic testing?
•What clinical trials might be available for this condition?
•Are there patient advocacy groups I should connect with?

Clinical

Associated Genes

1 gene

Gene data from HGNC • Click to view on NCBI Gene

Treatment

Support

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Help patients and families find support by registering your organization or suggesting a group that serves this community.

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AI-Generated Content: This summary was generated using AI. Always consult with qualified healthcare providers for medical guidance.

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alopecia, isolated

Patient-Friendly Information

Associated Genes

Associated Genes

Overview

Overview

Symptoms & Signs

Prognosis & Outlook

Quick Resources

General Questions to Consider

Clinical

Associated Genes

Treatment

Support

Related Diseases

Know a Patient Advocacy Group for this condition?

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