central retinal vein occlusion with macular edema - Symptoms, Causes & Research | Kisho | Kisho

central retinal vein occlusion with macular edema

Rare Disease

MONDO:0041093

Also known as:

Genes

–

Clinical Trials

6 active

Newborn Screening

–

Patient Groups

–

Patient-Friendly Information

Comprehensive, easy-to-understand information about this condition

How we create this content →

Last reviewed: Feb 2026

QC Validated

Evidence base: Early

Find Clinical TrialsTrials

Limited structured data is available for this condition. Information continues to be gathered as research progresses.(2 data sources · Data coverage: Limited)

Overview

Central retinal vein occlusion with macular edema is an extremely rare condition. Because few cases have been documented, detailed clinical information is limited.

Symptoms & Signs

The condition is also referred to as central retinal vein occlusion with macular edema. There are currently no known associated genes, inheritance patterns, or documented symptoms. Additionally, there are no orphan drugs under investigation for this condition.

Prognosis & Outlook

Patients and caregivers are encouraged to seek consultation with specialists experienced in retinal conditions. Connecting with rare disease registries and online patient communities may provide additional support and resources.

Quick Resources

Helpful links for rare disease information and support

GARD (Genetic and Rare Diseases Information Center)NORD (National Organization for Rare Disorders)

General Questions to Consider

Questions that may be helpful when speaking with your healthcare team

•Are there specialists or centers of excellence with experience in this condition?
•Is there a patient registry I could participate in?
•What clinical trials might be available for this condition?
•Are there patient advocacy groups I should connect with?

Limited structured data is available for this condition. Information continues to be gathered as research progresses.(2 data sources · Data coverage: Limited)

Overview

Central retinal vein occlusion with macular edema is an extremely rare condition. Because few cases have been documented, detailed clinical information is limited.

Symptoms & Signs

Prognosis & Outlook

Quick Resources

Helpful links for rare disease information and support

GARD (Genetic and Rare Diseases Information Center)NORD (National Organization for Rare Disorders)

General Questions to Consider

Questions that may be helpful when speaking with your healthcare team

•Are there specialists or centers of excellence with experience in this condition?
•Is there a patient registry I could participate in?
•What clinical trials might be available for this condition?
•Are there patient advocacy groups I should connect with?

Overview

Limited structured data is available for this condition. Information continues to be gathered as research progresses.(2 data sources · Data coverage: Limited)

Overview

Central retinal vein occlusion with macular edema is an extremely rare condition. Because few cases have been documented, detailed clinical information is limited.

Symptoms & Signs

Prognosis & Outlook

Quick Resources

Helpful links for rare disease information and support

GARD (Genetic and Rare Diseases Information Center)NORD (National Organization for Rare Disorders)

General Questions to Consider

Questions that may be helpful when speaking with your healthcare team

•Are there specialists or centers of excellence with experience in this condition?
•Is there a patient registry I could participate in?
•What clinical trials might be available for this condition?
•Are there patient advocacy groups I should connect with?

Clinical

Limited Clinical Data

Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.

Treatment

Clinical Trials

Research studies investigating treatments and therapies for this condition.

Active Trials

130

Total Trials

Filter trials on ClinicalTrials.gov:

View Recruiting Trials View All Trials

Data from ClinicalTrials.gov Jan 8, 2026

Support

Know a Patient Advocacy Group for this condition?

Help patients and families find support by registering your organization or suggesting a group that serves this community.

More resources will be added as they become available.

Was this helpful?

AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.

Need this data in your product?

Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.

Explore API Start Free

← Back to All Diseases