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familial idiopathic steroid-resistant nephrotic syndrome - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

familial idiopathic steroid-resistant nephrotic syndrome

MONDO:0019006

Also known as:familial idiopathic nephrotic syndrome

Find Clinical TrialsTrials

Overview

Familial idiopathic steroid-resistant nephrotic syndrome is characterized by a nephrotic syndrome with often early onset.

OnsetCHILDHOOD, JUVENILE

Clinical Trials9 registered · 5 recruiting

Diagnosis

Biomarker and diagnostic research for familial idiopathic steroid-resistant nephrotic syndrome has been reported in the published literature.

Prognosis

Estimated prevalence: Unknown (Unknown prevalence).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

9 clinical trials registered, 5 recruiting. Interventions under study include other interventions and drug therapy. Pipeline includes 1 PHASE3. Research is primarily sponsored by academic and government institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT02194582](https://clinicaltrials.gov/study/NCT02194582)

Data assembled from 4 of 12 sources · Last updated Sep 20, 2026, 12:16 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:656

GARD

Genetic and Rare Diseases Info Center

GARD:3946

Questions for Your Care Team

→Are any of the 9 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

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Research Type	Count	% of Total
Disease patterns and progression	9	38%
Laboratory research	5	21%
Research summaries	4	17%
Patient case studies	4	17%
Testing and diagnosis research	1	4%
New treatment approaches	1	4%

familial idiopathic steroid-resistant nephrotic syndrome

Overview

Diagnosis

Prognosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Subtypes

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

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