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Estimated prevalence: <1 in 1,000,000 (VERY_RARE).
No clinical trials have been registered for Grisel syndrome.
15 publications have been identified in PubMed for Grisel syndrome. Research spans Case Report / Case Series (53%), Review / Meta-Analysis (27%), and Epidemiology / Natural History (20%).
Research Type | Count | % of Total |
|---|---|---|
Patient case studies | 8 | 53% |
Data assembled from 3 of 12 sources · Last updated Sep 20, 2026, 11:10 AM UTC
European rare disease database
Common questions about Grisel syndrome
4 |
27% |
Disease patterns and progression | 3 | 20% |
Bal KK (2026). [PMID: 41855110](https://pubmed.ncbi.nlm.nih.gov/41855110/). *J Craniofac Surg*. [Epidemiology / Natural History]
Oshita Y (2026). [PMID: 40768319](https://pubmed.ncbi.nlm.nih.gov/40768319/). *Journal of pediatric orthopedics. Part B*. [Epidemiology / Natural History]
Heck VJ (2026). [PMID: 41319456](https://pubmed.ncbi.nlm.nih.gov/41319456/). *International journal of pediatric otorhinolaryngology*. [Review / Meta-Analysis]
Lambert J (2026). [PMID: 41684339](https://pubmed.ncbi.nlm.nih.gov/41684339/). *Revue medicale de Liege*. [Review / Meta-Analysis]
Nellicka SK (2025). [PMID: 41141006](https://pubmed.ncbi.nlm.nih.gov/41141006/). *Cureus*. [Case Report / Case Series]
Thomas IA (2025). [PMID: 40727170](https://pubmed.ncbi.nlm.nih.gov/40727170/). *Indian journal of otolaryngology and head and neck surgery : official publication of the Association of Otolaryngologists of India*. [Review / Meta-Analysis]
Toriumi K (2025). [PMID: 41396205](https://pubmed.ncbi.nlm.nih.gov/41396205/). *European spine journal : official publication of the European Spine Society, the European Spinal Deformity Society, and the European Section of the Cervical Spine Research Society*. [Epidemiology / Natural History]
Budha B (2025). [PMID: 39823970](https://pubmed.ncbi.nlm.nih.gov/39823970/). *International journal of surgery case reports*. [Case Report / Case Series]
Little SB (2025). [PMID: 40080438](https://pubmed.ncbi.nlm.nih.gov/40080438/). *Radiographics : a review publication of the Radiological Society of North America, Inc*. [Case Report / Case Series]
Koru L (2025). [PMID: 41071473](https://pubmed.ncbi.nlm.nih.gov/41071473/). *Clinical rheumatology*. [Review / Meta-Analysis]