IFAP syndrome

IFAP syndrome is a rare condition recognized by several names including ichthyosis follicularis-alopecia-photophobia syndrome and ichthyosis follicularis-atrichia-photophobia syndrome. The name suggests that the condition may involve skin changes (ichthyosis follicularis), hair loss (alopecia or atrichia), and sensitivity to light (photophobia). Although detailed information about what causes IFAP syndrome and how it progresses is limited, the naming provides clues about the areas of the body that may be affected.

The syndrome’s name points to several possible symptoms. This may include scaly or abnormal skin (ichthyosis follicularis), hair loss (alopecia or atrichia), and light sensitivity (photophobia). Detailed information about the full range of symptoms and how they present in people with this condition is currently limited.

Information about causes, genetics, and risk factors is currently limited for this condition.

Information about treatment options and management approaches is currently limited for this condition.

Information about the outlook and quality of life for people with IFAP syndrome is currently limited for this condition.

Information about current research and future directions for IFAP syndrome is currently limited for this condition.