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non-secreting paraganglioma - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

non-secreting paraganglioma

MONDO:0019788

Also known as:non-functioning paraganglioma

Overview

Non-functioning paraganglioma is a rare neuroendocrine tumor arising from neural crest-derived paraganglion cells (most often in the para-aortic region at the level of renal hilia, organ of Zuckerkandl, thoracic paraspinal region, bladder, and carotid body) not associated with catecholamine secretion. These tumors are usually clinically silent and symptoms, if present, are nonspecific and depend on the location of the tumor. Association with certain hereditary cancer-predisposing syndromes, such as multiple endocrine neoplasia, neurofibromatosis type 1 or von Hippel Lindau syndrome, may be observed.

ResearchLimited published research (6 articles)

Diagnosis

Biomarker and diagnostic research for non-secreting paraganglioma has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

No clinical trials have been registered for non-secreting paraganglioma.

6 publications have been identified in PubMed for non-secreting paraganglioma. Research spans Case Report / Case Series (83%) and Diagnostic / Biomarker (17%).

Recent Publications

Rusconi V (2026). [PMID: 41991230](https://pubmed.ncbi.nlm.nih.gov/41991230/). *BMJ Case Rep*. [Case Report / Case Series]
Gebregziabher KT (2025). [PMID: 40154071](https://pubmed.ncbi.nlm.nih.gov/40154071/). *Int J Surg Case Rep*. [Case Report / Case Series]
Majd W (2025). [PMID: 40976027](https://pubmed.ncbi.nlm.nih.gov/40976027/). *Int J Surg Case Rep*. [Case Report / Case Series]
Patel P (2025). [PMID: 41393536](https://pubmed.ncbi.nlm.nih.gov/41393536/). *Cureus*. [Case Report / Case Series]
Hussain Hakeem A (2025). [PMID: 40065926](https://pubmed.ncbi.nlm.nih.gov/40065926/). *Indian J Otolaryngol Head Neck Surg*. [Case Report / Case Series]

Data assembled from 3 of 12 sources · Last updated Sep 19, 2026, 6:47 AM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:94080

GARD

Genetic and Rare Diseases Info Center

GARD:19248

Questions for Your Care Team

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non-secreting paraganglioma

Overview

Diagnosis

Research Landscape

Recent Publications

Medical References

External Resources

Orphanet

GARD

Subtypes

Related Diseases

Questions for Your Care Team

Questions for Your Care Team