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Estimated prevalence: <1 in 1,000,000 (VERY_RARE).
No clinical trials have been registered for non-syndromic pansynostosis.
3 publications have been identified in PubMed for non-syndromic pansynostosis. Research spans Case Report / Case Series (33%), Basic Science / Preclinical (33%), and Gene Therapy / Novel Therapeutics (33%).
Delassus O (2026). [PMID: 40624761](https://pubmed.ncbi.nlm.nih.gov/40624761/). *J Anat*. [Basic Science / Preclinical]
Singh M (2025). [PMID: 40364872](https://pubmed.ncbi.nlm.nih.gov/40364872/). *Cureus*. [Case Report / Case Series]
Liu Z (2025). [PMID: 40353334](https://pubmed.ncbi.nlm.nih.gov/40353334/). *Mol Genet Genomic Med*. [Gene Therapy / Novel Therapeutics]
Data assembled from 3 of 12 sources · Last updated Sep 19, 2026, 11:07 AM UTC
European rare disease database
Genetic and Rare Diseases Info Center