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pancreatic neuroendocrine neoplasm (PNEN) - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

pancreatic neuroendocrine neoplasm

MONDO:0005815

Also known as:PNENendocrine pancreas neoplasmendocrine pancreas neoplasm (disease)

Find Clinical TrialsTrials

Overview

A neoplasm with neuroendocrine differentiation that arises from the pancreas. It includes neuroendocrine tumors (low and intermediate grade) and neuroendocrine carcinomas (high grade).

Clinical Trials8 registered · 4 recruiting

Diagnosis

Biomarker and diagnostic research for pancreatic neuroendocrine neoplasm has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

8 clinical trials registered, 4 recruiting. Interventions under study include drug therapy, other interventions, procedural interventions, and biologic therapy. Pipeline includes 2 PHASE3, 2 PHASE2. Research is sponsored by a mix of industry and academic institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT00830557](https://clinicaltrials.gov/study/NCT00830557)

Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 11:57 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:506052

GARD

Genetic and Rare Diseases Info Center

GARD:22052

Questions for Your Care Team

→Are any of the 8 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

← Back to All Diseases

Research Type	Count	% of Total
Research summaries	78	31%
Laboratory research	41	16%
Clinical study results	36	14%
Patient case studies	34	13%
Disease patterns and progression	30	12%
Testing and diagnosis research	29	11%
New treatment approaches	4	2%
Other research	2	1%

Kisho

pancreatic neuroendocrine neoplasm

Overview

Diagnosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Robotic subtotal pancreatectomy for multifocal neuroendocrine tumour of the pancreas.

Significant Intra-pancreatic Fat Deposition as an Independent Prognostic Factor in High-grade Pancreatic Neuroendocrine Neoplasms.

A case of conversion surgery for a pancreatic neuroendocrine neoplasm with tumor seeding-related peritoneal dissemination after endoscopic ultrasound-guided fine-needle biopsy.

pancreatic neuroendocrine neoplasm

Overview

Diagnosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Subtypes

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Robotic subtotal pancreatectomy for multifocal neuroendocrine tumour of the pancreas.

Significant Intra-pancreatic Fat Deposition as an Independent Prognostic Factor in High-grade Pancreatic Neuroendocrine Neoplasms.

A case of conversion surgery for a pancreatic neuroendocrine neoplasm with tumor seeding-related peritoneal dissemination after endoscopic ultrasound-guided fine-needle biopsy.