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persistent idiopathic facial pain (AFP) - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

persistent idiopathic facial pain

MONDO:0018362

Also known as:AFPPIFPatypical facial pain

Find Clinical TrialsTrials

Overview

Clinical Trials2 registered

Patient Orgs1 organizations · Facial Pain Association

Diagnosis

Biomarker and diagnostic research for persistent idiopathic facial pain has been reported in the published literature.

Prognosis

Estimated prevalence: Unknown (Unknown prevalence).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

2 clinical trials registered. Interventions under study include other interventions. Pipeline includes 1 NA. Research is primarily sponsored by academic and government institutions.

50 publications have been identified in PubMed for persistent idiopathic facial pain. Research spans Case Report / Case Series (28%), Review / Meta-Analysis (22%), and Epidemiology / Natural History (22%).

Research Type	Count	% of Total
Patient case studies	14

Data assembled from 4 of 12 sources · Last updated Sep 18, 2026, 3:11 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Patient Advocacy Groups

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Facial Pain AssociationPrimary Focus

USWebsite ↗

Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.

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Medical References

External Resources

Orphanet

European rare disease database

Orphanet:398147

GARD

Genetic and Rare Diseases Info Center

GARD:21649

Questions for Your Care Team

→Are any of the 2 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→How can I connect with Facial Pain Association and other patient organizations for support?

← Back to All Diseases

persistent idiopathic facial pain

Overview

Diagnosis

Prognosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

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