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plexiform neurofibroma - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

plexiform neurofibroma

MONDO:0003304

Also known as:plexiform neurofibroma (disease)

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Overview

An elongated and multinodular neurofibroma, formed when the tumor involves either multiple trunks of a plexus or multiple fascicles of a large nerve, such as the sciatic. Some plexiform neurofibromas resemble a bag of worms, others produce a massive ropy enlargement of the nerve. (Adapted from WHO.)

Clinical Trials21 registered · 7 recruiting

Diagnosis

Biomarker and diagnostic research for plexiform neurofibroma has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

21 clinical trials registered, 7 recruiting. Interventions under study include drug therapy, other interventions, and medical devices. Pipeline includes 3 PHASE3, 6 PHASE2, 5 PHASE1. Research is sponsored by a mix of industry and academic institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT07407803](https://clinicaltrials.gov/study/NCT07407803)

Data assembled from 3 of 12 sources · Last updated Sep 19, 2026, 9:52 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

Questions for Your Care Team

→Are any of the 21 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

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Research Type	Count	% of Total
Patient case studies	78	41%
Clinical study results	27	14%
Laboratory research	26	14%
Research summaries	25	13%
Disease patterns and progression	19	10%
New treatment approaches	10	5%
Testing and diagnosis research	4	2%
Other research	2	1%

Kisho

plexiform neurofibroma

Overview

Diagnosis

Research Landscape

Medical References

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Staged Resection and Reconstruction of a 60-kg Giant Plexiform Neurofibroma Involving the Posterior Trunk and Thigh.

plexiform neurofibroma

Overview

Diagnosis

Research Landscape

Medical References

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Staged Resection and Reconstruction of a 60-kg Giant Plexiform Neurofibroma Involving the Posterior Trunk and Thigh.