Comprehensive, easy-to-understand information about this condition
How we create this content →Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
The limited documentation surrounding posterior uveal melanoma reflects its rarity and the challenges in conducting systematic studies. Because this condition affects a small number of individuals, comprehensive clinical data and phenotypic characterizations are scarce. This can understandably lead to frustration for patients seeking more information about their diagnosis and treatment options.
To navigate your care for posterior uveal melanoma, consider seeking out an oncologist with expertise in ocular cancers. They can provide specialized insights and treatment options tailored to your condition. Additionally, explore resources such as the National Organization for Rare Disorders (NORD) at https://rarediseases.org, which offers support and information for patients with rare diseases. Participation in clinical trials may also be an option, and you can inquire about any available registries or natural history studies that could contribute to a better understanding of your condition.
There are several orphan drugs designated for the treatment of posterior uveal melanoma, including tebentafusp-tebn, darovasertib, and various investigational drugs currently in development. Additionally, there is one active clinical trial available for patients. For more details on ongoing research, you can visit ClinicalTrials.gov and search for 'posterior uveal melanoma' at https://clinicaltrials.gov/search?cond=posterior%20uveal%20melanoma. This research offers hope for advancements in treatment options.
Actionable guidance for navigating care for posterior uveal melanoma
To navigate your care for posterior uveal melanoma, consider seeking out an oncologist with expertise in ocular cancers. They can provide specialized insights and treatment options tailored to your condition. Additionally, explore resources such as the National Organization for Rare Disorders (NORD) at https://rarediseases.org, which offers support and information for patients with rare diseases. Participation in clinical trials may also be an option, and you can inquire about any available registries or natural history studies that could contribute to a better understanding of your condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.