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primary cutaneous lymphoma - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

primary cutaneous lymphoma

MONDO:0018898

Also known as:cutaneous (skin) lymphomaprimary skin lymphoma

Find Clinical TrialsTrials

Overview

Cutaneous lymphoma is a heterogeneous entity with respect to its clinical and pathological features, evolutive profile, prognosis, molecular etiology and response to therapy. These specifications have been taken into account in recent classifications, which have placed particular importance on the prognostic implications of these different entities.

Clinical Trials8 registered · 3 recruiting

Patient Orgs1 organizations · Cutaneous Lymphoma Foundation

Diagnosis

Biomarker and diagnostic research for primary cutaneous lymphoma has been reported in the published literature.

Prognosis

Estimated prevalence: 1-9 in 100,000 (Uncommon).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

8 clinical trials registered, 3 recruiting. Interventions under study include other interventions, drug therapy, medical devices, and procedural interventions. Pipeline includes 1 PHASE2, 2 PHASE1, 2 NA. Research is primarily sponsored by academic and government institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT05518851](https://clinicaltrials.gov/study/NCT05518851)

Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 8:58 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Patient Advocacy Groups

View all PAGs →

Cutaneous Lymphoma FoundationPrimary Focus

USWebsite ↗

Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.

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Medical References

External Resources

Orphanet

European rare disease database

Orphanet:542

GARD

Genetic and Rare Diseases Info Center

GARD:18698

Questions for Your Care Team

→Are any of the 8 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→How can I connect with Cutaneous Lymphoma Foundation and other patient organizations for support?

← Back to All Diseases

Research Type	Count	% of Total
Research summaries	26	41%
Patient case studies	19	30%
Disease patterns and progression	8	13%
Testing and diagnosis research	4	6%
Clinical study results	2	3%
Laboratory research	2	3%
Other research	1	2%
New treatment approaches	1	2%

Kisho

primary cutaneous lymphoma

Overview

Diagnosis

Prognosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

External Resources

Orphanet

GARD

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Primary Cutaneous Gamma-Delta T-Cell Lymphoma With Unusual Clinicopathological Characteristics: A Study of Three Patients With Molecular Characterization.

Delayed diagnosis of primary cutaneous histoplasmosis in a patient receiving tumour necrosis factor alpha inhibitor therapy.

Clinical heterogeneity of primary cutaneous γδ T-cell lymphoma: a 20-year single-institution experience.

primary cutaneous lymphoma

Overview

Diagnosis

Prognosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications

Latest News & Developments

Primary Cutaneous Gamma-Delta T-Cell Lymphoma With Unusual Clinicopathological Characteristics: A Study of Three Patients With Molecular Characterization.

Delayed diagnosis of primary cutaneous histoplasmosis in a patient receiving tumour necrosis factor alpha inhibitor therapy.

Clinical heterogeneity of primary cutaneous γδ T-cell lymphoma: a 20-year single-institution experience.