Increased pressure within the pulmonary circulation due to lung or heart disorder.
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation surrounding pulmonary hypertension is limited due to its complex nature and the fact that it affects a relatively small population. This condition can be influenced by various underlying health issues, making systematic clinical studies challenging. Additionally, the genetic basis and specific clinical features are still being characterized, which contributes to the current gaps in knowledge.
To navigate pulmonary hypertension effectively, consider consulting with a cardiologist who specializes in pulmonary vascular diseases. Engaging with patient organizations such as the Pulmonary Hypertension Association (https://phassociation.org) can provide valuable resources and support. Additionally, inquire about participation in clinical trials or natural history studies that may be available. Genetic counseling could also be beneficial, especially considering the identified SARS2 gene, to explore potential implications for you and your family.
There are currently 397 active clinical trials related to pulmonary hypertension, providing hope for new treatment options. You can explore these trials through the ClinicalTrials.gov search link: https://clinicaltrials.gov/search?cond=pulmonary%20hypertension. While there are no orphan drug designations at this time, the ongoing research may lead to new insights and therapies in the future.
Actionable guidance for navigating care for pulmonary hypertension
To navigate pulmonary hypertension effectively, consider consulting with a cardiologist who specializes in pulmonary vascular diseases. Engaging with patient organizations such as the Pulmonary Hypertension Association (https://phassociation.org) can provide valuable resources and support. Additionally, inquire about participation in clinical trials or natural history studies that may be available. Genetic counseling could also be beneficial, especially considering the identified SARS2 gene, to explore potential implications for you and your family.
Consider asking your healthcare providers these condition-specific questions
Connect with organizations supporting the pulmonary hypertension community
Helpful links for rare disease information and support
The documentation surrounding pulmonary hypertension is limited due to its complex nature and the fact that it affects a relatively small population. This condition can be influenced by various underlying health issues, making systematic clinical studies challenging. Additionally, the genetic basis and specific clinical features are still being characterized, which contributes to the current gaps in knowledge.
To navigate pulmonary hypertension effectively, consider consulting with a cardiologist who specializes in pulmonary vascular diseases. Engaging with patient organizations such as the Pulmonary Hypertension Association (https://phassociation.org) can provide valuable resources and support. Additionally, inquire about participation in clinical trials or natural history studies that may be available. Genetic counseling could also be beneficial, especially considering the identified SARS2 gene, to explore potential implications for you and your family.
There are currently 397 active clinical trials related to pulmonary hypertension, providing hope for new treatment options. You can explore these trials through the ClinicalTrials.gov search link: https://clinicaltrials.gov/search?cond=pulmonary%20hypertension. While there are no orphan drug designations at this time, the ongoing research may lead to new insights and therapies in the future.
Actionable guidance for navigating care for pulmonary hypertension
To navigate pulmonary hypertension effectively, consider consulting with a cardiologist who specializes in pulmonary vascular diseases. Engaging with patient organizations such as the Pulmonary Hypertension Association (https://phassociation.org) can provide valuable resources and support. Additionally, inquire about participation in clinical trials or natural history studies that may be available. Genetic counseling could also be beneficial, especially considering the identified SARS2 gene, to explore potential implications for you and your family.
Consider asking your healthcare providers these condition-specific questions
Connect with organizations supporting the pulmonary hypertension community
Helpful links for rare disease information and support
The documentation surrounding pulmonary hypertension is limited due to its complex nature and the fact that it affects a relatively small population. This condition can be influenced by various underlying health issues, making systematic clinical studies challenging. Additionally, the genetic basis and specific clinical features are still being characterized, which contributes to the current gaps in knowledge.
To navigate pulmonary hypertension effectively, consider consulting with a cardiologist who specializes in pulmonary vascular diseases. Engaging with patient organizations such as the Pulmonary Hypertension Association (https://phassociation.org) can provide valuable resources and support. Additionally, inquire about participation in clinical trials or natural history studies that may be available. Genetic counseling could also be beneficial, especially considering the identified SARS2 gene, to explore potential implications for you and your family.
There are currently 397 active clinical trials related to pulmonary hypertension, providing hope for new treatment options. You can explore these trials through the ClinicalTrials.gov search link: https://clinicaltrials.gov/search?cond=pulmonary%20hypertension. While there are no orphan drug designations at this time, the ongoing research may lead to new insights and therapies in the future.
Actionable guidance for navigating care for pulmonary hypertension
To navigate pulmonary hypertension effectively, consider consulting with a cardiologist who specializes in pulmonary vascular diseases. Engaging with patient organizations such as the Pulmonary Hypertension Association (https://phassociation.org) can provide valuable resources and support. Additionally, inquire about participation in clinical trials or natural history studies that may be available. Genetic counseling could also be beneficial, especially considering the identified SARS2 gene, to explore potential implications for you and your family.
Consider asking your healthcare providers these condition-specific questions
Connect with organizations supporting the pulmonary hypertension community
Helpful links for rare disease information and support
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Feb 10, 2026
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
2 peer-reviewed sources from PubMed
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.
AI-curated news mentioning pulmonary hypertension
Updated Feb 9, 2026
A recent study explores multimodality imaging insights in a rare adult survivor of Taussig-Bing heart with pulmonary hypertension. This research contributes to understanding the complexities of this rare congenital heart defect.