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secondary short bowel syndrome - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

secondary short bowel syndrome

MONDO:0019802

Overview

Secondary short bowel syndrome is an intestinal failure caused by any condition that results in a functional small intestine of less than 200 cm in length and is characterized by diarrhea, nutrient malabsoption, bowel dilation and dysmobility.

Clinical Presentation

Built from Human Phenotype Ontology (HPO) phenotype annotations and GeneReviews clinical descriptions. Features represent findings documented across known cases — not an exhaustive list of possible symptoms.

Features include common findings: Weight loss, Malabsorption, Abnormal small intestine morphology, and Malnutrition and others; and sometimes findings: Primary hypothyroidism, Cholestasis, Failure to thrive, and Growth delay and others. 32 total HPO annotations.

Organ System	Phenotype Count	Example Features
Digestive system	11	Malabsorption, Abnormal small intestine morphology, Cholestasis

Prognosis

Phenotype severity distribution: 5 common features.

Estimated prevalence: Unknown (Unknown prevalence).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

No clinical trials have been registered for secondary short bowel syndrome.

68 publications have been identified in PubMed for secondary short bowel syndrome. Research spans Case Report / Case Series (31%), Clinical Trial Publication (31%), and Epidemiology / Natural History (18%).

Research Type	Count	% of Total
Patient case studies	21	31%

Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 9:41 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Financial & Access Support (External Programs)

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Short Bowel Syndrome Medical Assistance

Medical AssistanceCurrently AcceptingOperated by National Organization for Rare Disorders

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Short Bowel Syndrome Premium Copay Assistance

Premium/CopayCurrently AcceptingOperated by National Organization for Rare Disorders

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Medical References

External Resources

Orphanet

European rare disease database

Orphanet:95427

GARD

Genetic and Rare Diseases Info Center

GARD:19258

Questions for Your Care Team

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Kisho

secondary short bowel syndrome

Overview

Clinical Presentation

Prognosis

Research Landscape

Patient Support

Financial & Access Support (External Programs)

Are you a patient organization for this condition?

Medical References

External Resources

Orphanet

GARD

Questions for Your Care Team

Questions for Your Care Team

Explore clinical features

Recent Publications

Latest News & Developments

Lilly maintains deal streak with $1.2B pact for Hanmi's GLP-2 candidate

[Use of teduglutide in short bowel syndrome in infants, children and adolescents: Position paper of the working group "Chronic intestinal failure" of the Society for Paediatric Gastroenterology and Nutrition (GPGE)].

secondary short bowel syndrome

Overview

Clinical Presentation

Prognosis

Research Landscape

Patient Support

Financial & Access Support (External Programs)

Are you a patient organization for this condition?

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Explore clinical features

Recent Publications

Latest News & Developments

Lilly maintains deal streak with $1.2B pact for Hanmi's GLP-2 candidate

[Use of teduglutide in short bowel syndrome in infants, children and adolescents: Position paper of the working group "Chronic intestinal failure" of the Society for Paediatric Gastroenterology and Nutrition (GPGE)].