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1 additional grant classified as “Other” (multi-disciplinary, infrastructure, etc.).
Funding by Fiscal Year
NIH fiscal year (Oct–Sep)
$663K
FY22
$594K
FY23
$359K
FY24
$202K
FY25
$242K
FY26
By Funding Mechanism
R21
2
R01
1
R13
1
Funding Gap Analysis
Cross-referencing NIH grants against published research and clinical trials to identify funding-evidence gaps for Sturge-Weber Syndrome. Strongest funded area: Clinical Research. Largest gap: Epidemiology / Natural History.
Biomarker / DiagnosticsPublished, Not NIH-Funded
13 publications in Diagnostic / Biomarker but no NIH-funded grants found in Biomarker / Diagnostics for Sturge-Weber syndrome. Existing research activity suggests this may be a viable area for grant applications.
Epidemiology / Natural HistoryPublished, Not NIH-Funded
73 publications in Case Report / Case Series but no NIH-funded grants found in Epidemiology / Natural History for Sturge-Weber syndrome. Existing research activity suggests this may be a viable area for grant applications.
Epidemiology / Natural HistoryPublished, Not NIH-Funded
18 publications in Epidemiology / Natural History but no NIH-funded grants found in Epidemiology / Natural History for Sturge-Weber syndrome. Existing research activity suggests this may be a viable area for grant applications.
Translational / Drug DevelopmentPublished, Not NIH-Funded
6 publications in Gene Therapy / Novel Therapeutics but no NIH-funded grants found in Translational / Drug Development for Sturge-Weber syndrome. Existing research activity suggests this may be a viable area for grant applications.
Adjacent Research(4 grants)
These grants mention Sturge-Weber Syndrome as part of broader research but are not primarily focused on this disease. They are not included in the funding totals above.
Other(4)
OtherR01Completed
Capillary malformation: From somatic GNAQ mutations to disrupted endothelial biology
Bischoff, Joyce et al.·BOSTON CHILDREN'S HOSPITAL·BOSTON, MA
