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tubulocystic renal cell carcinoma - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

tubulocystic renal cell carcinoma

MONDO:0017890

Also known as:Tubulocystic renal cell cancer

Overview

Tubulocystic renal cell carcinoma is an extremely rare subtype of renal cell carcinoma most frequently characterized by a small, solitary, well-circumscribed, unencapsulated renal tumor composed of multiple small to medium-sized cysts with a white or gray, spongy ("bubble wrap-like") cut surface. Patients are usually asymptomatic or could manifest with abdominal pain, abdominal distension and/or hematuria. Progression, recurrence and metastasis rarely occur although lymph node, bone, pleura and liver mestatsis have been reported.

Diagnosis

Biomarker and diagnostic research for tubulocystic renal cell carcinoma has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

No clinical trials have been registered for tubulocystic renal cell carcinoma.

12 publications have been identified in PubMed for tubulocystic renal cell carcinoma. Research spans Case Report / Case Series (58%), Other (17%), and Diagnostic / Biomarker (8%).

Research Type	Count	% of Total
Patient case studies	7	58%

Data assembled from 3 of 12 sources · Last updated Sep 19, 2026, 7:27 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:319325

GARD

Genetic and Rare Diseases Info Center

GARD:21419

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tubulocystic renal cell carcinoma

Overview

Diagnosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

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