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dentofacial characteristics in patients with epidermolysis bullosa a cross sectional study
Original title: “Dentofacial Characteristics in Patients With Epidermolysis Bullosa-A Cross-Sectional Study.”
living on fragile skin the lived experiences of children with epidermolysis bullosa
Original title: “Living on fragile skin: the lived experiences of children with epidermolysis bullosa.”
correction to quality of life in children and adults with epidermolysis bullosa the qol reb explorative study
Original title: “Correction to: Quality of life in children and adults with epidermolysis bullosa: the QoL-REB explorative study.”
itgb4 variant modifies the severity of itga3 associated interstitial lung disease nephrotic syndrome and epidermolysis bullosa ilneb
Original title: “An ITGB4 variant modifies the severity of ITGA3-associated interstitial lung disease, nephrotic syndrome, and epidermolysis bullosa (ILNEB).”
health related quality of life in recessive dystrophic epidermolysis bullosa findings of the prospective epidermolysis bullosa longitudinal evaluation study pebles
Original title: “Health-related quality of life in recessive dystrophic epidermolysis bullosa: findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES).”
recessive dystrophic epidermolysis bullosa in a resource limited setting a case report from mohamed adam sheikh children s teaching hospital hargeisa somaliland
Original title: “Recessive Dystrophic Epidermolysis Bullosa in a Resource-Limited Setting: A Case Report From Mohamed Adam Sheikh Children's Teaching Hospital Hargeisa, Somaliland.”
epidermolysis bullosa and global challenges in translational research for rare diseases
Original title: “Epidermolysis bullosa and global challenges in translational research for rare diseases.”
Sponsor introductory remarks on measure. (CR H2535)
Original title: “HR 7877: To require the Secretary of Health and Human Services to establish a demonstration program to test mandatory coverage of treatment for wound care for epidermolysis bullosa under the Medicaid program.”
understanding the efficacy and tolerability of topical therapies for epidermolysis bullosa
Original title: “Understanding the efficacy and tolerability of topical therapies for epidermolysis bullosa.”