New York, Monday, January 26, 2026 – In recognition of Rare Disease Day on February 28, the Muscular Dystrophy Association (MDA) is sharing powerful community stories throughout the month that reflect how connection, research, and advocacy are advancing care and opportunity for people living ... New York, Monday, January 26, 2026 – In recognition of Rare Disease Day on February 28, the Muscular Dystrophy Association (MDA) is sharing powerful community stories throughout the month that reflect how connection, research, and advocacy are advancing care and opportunity for people living with rare neuromuscular diseases. MDA is the #1 health nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS, and related neuromuscular diseases. Rare Disease Day is observed globally on February 28 to prompt action through increased awareness, research, and community engagement. MDA encourages people diagnosed with a neuromuscular condition and their families to engage with its year-round programming—including educational webinars, support groups, advocacy initiatives, and community events—to stay informed and connected. Early on, her family was learning how to support a child with a rare, complex condition. Now at 23, Gabrielle is an adult building her future. She is pursuing graduate study in clinical mental health counseling, with the goal of one day opening her own clinic to serve underrepresented communities including people living with disabilities. Gabrielle credits MDA’s support in helping shape her career goals and her advocacy work.

Original title: “Muscular Dystrophy Association Marks Rare Disease Day by Spotlighting Community Stories Driving Progress in Research, Care, and Advocacy | Muscular Dystrophy Association”