A Michigan mother, Azeza Kasham, is raising awareness for the fatal Lafora disease, which two of her sons, Hiatham and Gigi Breadiy, were both diagnosed with. Her older son, Hiatham, was diagnosed in 2017 and died in 2019, and Gigi was diagnosed days after his brother's death. The disease is fatal even with treatment, and affects roughly one in 10 million people. Patients are typically given a 10-year life expectancy after initial diagnosis. It occurs when both parents unknowingly carry the gene. Her elder son, Hiatham, was diagnosed at 16 years old in 2017 and died of the disease two years later · Hiatham's brother, Gigi, was diagnosed with the fatal condition 10 days after his brother's death · A Michigan mother is working to raise awareness of a rare disease that's had a profound impact on her family. "This disease is taking him piece by piece." The mother continued: "Ultimately, I'm going to lose him." Kasham, who cares for her son as she raises awareness for his condition, also noted that the company researching a cure recently stopped its work. "I want to feel like I did everything I could for him, and right now I don't feel that way,” she said. 7-Year-Old with Rare Disease — 'Basically Childhood Dementia' — Needs $172,000 Therapy Every 2 Weeks (Exclusive) Dr. Nancy McNamara, the division chief of Pediatric Neurology at Corewell Health, remarked on the disease’s severity, "I often think about this one being one of the worst diseases that you could have.”

Original title: “16-Year-Old Boy Diagnosed with Fatal Rare Disease Days After Brother Died from the Same Disease”