A qualitative study highlights the psychosocial challenges faced by families of children with xeroderma pigmentosum. The research underscores the emotional and social impacts of this rare skin disorder on affected families.
living with xeroderma pigmentosum a qualitative study of the psychosocial challenges experienced by families of children with a rare skin disorder
Original title: “Living with Xeroderma Pigmentosum: a qualitative study of the psychosocial challenges experienced by families of children with a rare skin disorder.”