Stickler syndromeResearch
A qualitative study explores health-related quality of life in adults with Stickler syndrome in Norway, providing insights into their lived experiences. This research highlights the challenges faced by this patient population, contributing to a better understanding of the disease's impact.
beyond the diagnosis living with stickler syndrome a qualitative exploration of health related quality of life in a cohort of adults with stickler syndrome in norway
Original title: “Beyond the diagnosis: Living with Stickler syndrome - A qualitative exploration of health-related quality of life in a cohort of adults with Stickler syndrome in Norway.”