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Rare Disorders New Zealand advocates for individuals and their families living with rare disorders, aiming to improve access to health, disability, and education services for the 300,000 New Zealanders affected.
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Listed on Kisho — Trusted Rare Disease Intelligence
FOXG1 Research Foundation
International FOXG1 Foundation
International Prader-Willi Syndrome Organisation
Prader-Willi Syndrome Association (UK)