Calciphylaxis is a disease in which blood vessels (veins and arteries) become blocked by a build-up of calcium in the walls of the vessels, preventing blood from flowing to the skin or internal organs...
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation surrounding calciphylaxis is limited due to its rarity and the complexity of its clinical presentation. With few systematic studies conducted, the understanding of its genetic basis and clinical features remains incomplete. This condition affects a small population, making it challenging to gather extensive clinical data and insights.
To navigate your care effectively, consider consulting a specialist in vascular medicine or a dermatologist with experience in treating calciphylaxis. These professionals can provide tailored management strategies for your symptoms. While no patient organizations are currently identified for calciphylaxis, you can find valuable resources through the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. Additionally, inquire about participation in clinical trials, which may offer access to emerging therapies.
There are currently three orphan drugs designated for calciphylaxis: hexasodium phytate, menaquinone, and sodium thiosulfate, which are in various stages of development. Additionally, there are six active clinical trials investigating potential treatments and management strategies for this condition. For more information on these trials, you can visit ClinicalTrials.gov and search for calciphylaxis.
Actionable guidance for navigating care for calciphylaxis
To navigate your care effectively, consider consulting a specialist in vascular medicine or a dermatologist with experience in treating calciphylaxis. These professionals can provide tailored management strategies for your symptoms. While no patient organizations are currently identified for calciphylaxis, you can find valuable resources through the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. Additionally, inquire about participation in clinical trials, which may offer access to emerging therapies.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding calciphylaxis is limited due to its rarity and the complexity of its clinical presentation. With few systematic studies conducted, the understanding of its genetic basis and clinical features remains incomplete. This condition affects a small population, making it challenging to gather extensive clinical data and insights.
To navigate your care effectively, consider consulting a specialist in vascular medicine or a dermatologist with experience in treating calciphylaxis. These professionals can provide tailored management strategies for your symptoms. While no patient organizations are currently identified for calciphylaxis, you can find valuable resources through the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. Additionally, inquire about participation in clinical trials, which may offer access to emerging therapies.
There are currently three orphan drugs designated for calciphylaxis: hexasodium phytate, menaquinone, and sodium thiosulfate, which are in various stages of development. Additionally, there are six active clinical trials investigating potential treatments and management strategies for this condition. For more information on these trials, you can visit ClinicalTrials.gov and search for calciphylaxis.
Actionable guidance for navigating care for calciphylaxis
To navigate your care effectively, consider consulting a specialist in vascular medicine or a dermatologist with experience in treating calciphylaxis. These professionals can provide tailored management strategies for your symptoms. While no patient organizations are currently identified for calciphylaxis, you can find valuable resources through the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. Additionally, inquire about participation in clinical trials, which may offer access to emerging therapies.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding calciphylaxis is limited due to its rarity and the complexity of its clinical presentation. With few systematic studies conducted, the understanding of its genetic basis and clinical features remains incomplete. This condition affects a small population, making it challenging to gather extensive clinical data and insights.
To navigate your care effectively, consider consulting a specialist in vascular medicine or a dermatologist with experience in treating calciphylaxis. These professionals can provide tailored management strategies for your symptoms. While no patient organizations are currently identified for calciphylaxis, you can find valuable resources through the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. Additionally, inquire about participation in clinical trials, which may offer access to emerging therapies.
There are currently three orphan drugs designated for calciphylaxis: hexasodium phytate, menaquinone, and sodium thiosulfate, which are in various stages of development. Additionally, there are six active clinical trials investigating potential treatments and management strategies for this condition. For more information on these trials, you can visit ClinicalTrials.gov and search for calciphylaxis.
Actionable guidance for navigating care for calciphylaxis
To navigate your care effectively, consider consulting a specialist in vascular medicine or a dermatologist with experience in treating calciphylaxis. These professionals can provide tailored management strategies for your symptoms. While no patient organizations are currently identified for calciphylaxis, you can find valuable resources through the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov. Additionally, inquire about participation in clinical trials, which may offer access to emerging therapies.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 31, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 3 companies have orphan drug designations for this disease
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.