Comprehensive, easy-to-understand information about this condition
How we create this content →Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
The documentation surrounding neonatal autoimmune hemolytic anemia is limited primarily due to its extreme rarity, affecting fewer than 1 in 1,000,000 individuals. This rarity results in insufficient systematic clinical studies and a lack of comprehensive data on its clinical features and management strategies. As research continues, there is hope for better understanding and treatment options.
To navigate your care for neonatal autoimmune hemolytic anemia, consider seeking a hematologist with expertise in autoimmune blood disorders. It may also be beneficial to connect with specialized centers that focus on rare hematologic conditions. For additional resources, visit the Genetic and Rare Diseases Information Center at rarediseases.info.nih.gov. Participating in clinical trials may offer access to new treatments; check the active trials listed on ClinicalTrials.gov for eligibility.
Currently, there are several orphan drugs designated for the treatment of neonatal autoimmune hemolytic anemia, including sutimlimab-jome and a range of investigational therapies such as fostamatinib disodium and nipocalimab. There are also 8 active clinical trials exploring various treatment options. You can find more information about these trials at ClinicalTrials.gov by searching for 'neonatal autoimmune hemolytic anemia'.
Actionable guidance for navigating care for neonatal autoimmune hemolytic anemia
To navigate your care for neonatal autoimmune hemolytic anemia, consider seeking a hematologist with expertise in autoimmune blood disorders. It may also be beneficial to connect with specialized centers that focus on rare hematologic conditions. For additional resources, visit the Genetic and Rare Diseases Information Center at rarediseases.info.nih.gov. Participating in clinical trials may offer access to new treatments; check the active trials listed on ClinicalTrials.gov for eligibility.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.