Kisho

Kisho is an information platform, not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. All content is aggregated from publicly available sources (including ClinicalTrials.gov, PubMed, FDA.gov, and Orphanet) and is provided for informational purposes only. Clinical trial eligibility, treatment decisions, and any health-related actions should always be discussed with a qualified healthcare professional. Kisho does not endorse any specific therapy, organization, or clinical trial. Terms of use · Privacy policy

primary progressive apraxia of speech (PPAOS) - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

primary progressive apraxia of speech

MONDO:0017803

Also known as:PPAOS

Find Clinical TrialsTrials

Overview

Clinical Trials6 registered · 2 recruiting

Diagnosis

Biomarker and diagnostic research for primary progressive apraxia of speech has been reported in the published literature.

Prognosis

Estimated prevalence: <1 in 1,000,000 (VERY_RARE).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

6 clinical trials registered, 2 recruiting. Interventions under study include drug therapy, other interventions, and medical devices. Pipeline includes 1 PHASE4, 1 PHASE2, 2 NA. Research is primarily sponsored by academic and government institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT01818661](https://clinicaltrials.gov/study/NCT01818661)

Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 10:24 AM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:314566

GARD

Genetic and Rare Diseases Info Center

GARD:21377

Questions for Your Care Team

→Are any of the 6 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

← Back to All Diseases

Research Type	Count	% of Total
Disease patterns and progression	6	30%
Research summaries	4	20%
Patient case studies	4	20%
Testing and diagnosis research	3	15%
Laboratory research	2	10%
Other research	1	5%

primary progressive apraxia of speech

Overview

Diagnosis

Prognosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications