An adenoid cystic carcinoma arising from the salivary gland. It is characterized by the presence of epithelial and myoepithelial cells forming tubular, cribriform, and solid patterns. It usually prese...
Comprehensive, easy-to-understand information about this condition
How we create this content →The documentation surrounding salivary gland adenoid cystic carcinoma is limited due to its rarity, which affects fewer than 1 in 100,000 individuals. This rarity restricts the ability to conduct systematic clinical studies and gather comprehensive data. Additionally, the complex nature of the disease, including its diverse clinical presentations and potential overlap with other salivary gland tumors, contributes to the challenges in understanding its full clinical picture.
To navigate your care for salivary gland adenoid cystic carcinoma, it is essential to consult with an oncologist who specializes in head and neck cancers. They can provide tailored treatment options and monitor your condition closely. Additionally, consider participating in clinical trials, which may offer access to cutting-edge therapies. You can find relevant trials at ClinicalTrials.gov. For further support, the National Organization for Rare Disorders (NORD) offers resources for patients with rare diseases at rarediseases.org.
Currently, there are several orphan drugs in development targeting salivary gland adenoid cystic carcinoma, including a potent inhibitor of Gamma Secretase-mediated NOTCH signaling and a small molecule messenger RNA degrader of MYB. Additionally, there are 13 active clinical trials exploring various treatment options for this condition. For more information on these trials, you can visit ClinicalTrials.gov and search for 'salivary gland adenoid cystic carcinoma'.
Actionable guidance for navigating care for salivary gland adenoid cystic carcinoma
To navigate your care for salivary gland adenoid cystic carcinoma, it is essential to consult with an oncologist who specializes in head and neck cancers. They can provide tailored treatment options and monitor your condition closely. Additionally, consider participating in clinical trials, which may offer access to cutting-edge therapies. You can find relevant trials at ClinicalTrials.gov. For further support, the National Organization for Rare Disorders (NORD) offers resources for patients with rare diseases at rarediseases.org.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding salivary gland adenoid cystic carcinoma is limited due to its rarity, which affects fewer than 1 in 100,000 individuals. This rarity restricts the ability to conduct systematic clinical studies and gather comprehensive data. Additionally, the complex nature of the disease, including its diverse clinical presentations and potential overlap with other salivary gland tumors, contributes to the challenges in understanding its full clinical picture.
To navigate your care for salivary gland adenoid cystic carcinoma, it is essential to consult with an oncologist who specializes in head and neck cancers. They can provide tailored treatment options and monitor your condition closely. Additionally, consider participating in clinical trials, which may offer access to cutting-edge therapies. You can find relevant trials at ClinicalTrials.gov. For further support, the National Organization for Rare Disorders (NORD) offers resources for patients with rare diseases at rarediseases.org.
Currently, there are several orphan drugs in development targeting salivary gland adenoid cystic carcinoma, including a potent inhibitor of Gamma Secretase-mediated NOTCH signaling and a small molecule messenger RNA degrader of MYB. Additionally, there are 13 active clinical trials exploring various treatment options for this condition. For more information on these trials, you can visit ClinicalTrials.gov and search for 'salivary gland adenoid cystic carcinoma'.
Actionable guidance for navigating care for salivary gland adenoid cystic carcinoma
To navigate your care for salivary gland adenoid cystic carcinoma, it is essential to consult with an oncologist who specializes in head and neck cancers. They can provide tailored treatment options and monitor your condition closely. Additionally, consider participating in clinical trials, which may offer access to cutting-edge therapies. You can find relevant trials at ClinicalTrials.gov. For further support, the National Organization for Rare Disorders (NORD) offers resources for patients with rare diseases at rarediseases.org.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The documentation surrounding salivary gland adenoid cystic carcinoma is limited due to its rarity, which affects fewer than 1 in 100,000 individuals. This rarity restricts the ability to conduct systematic clinical studies and gather comprehensive data. Additionally, the complex nature of the disease, including its diverse clinical presentations and potential overlap with other salivary gland tumors, contributes to the challenges in understanding its full clinical picture.
To navigate your care for salivary gland adenoid cystic carcinoma, it is essential to consult with an oncologist who specializes in head and neck cancers. They can provide tailored treatment options and monitor your condition closely. Additionally, consider participating in clinical trials, which may offer access to cutting-edge therapies. You can find relevant trials at ClinicalTrials.gov. For further support, the National Organization for Rare Disorders (NORD) offers resources for patients with rare diseases at rarediseases.org.
Currently, there are several orphan drugs in development targeting salivary gland adenoid cystic carcinoma, including a potent inhibitor of Gamma Secretase-mediated NOTCH signaling and a small molecule messenger RNA degrader of MYB. Additionally, there are 13 active clinical trials exploring various treatment options for this condition. For more information on these trials, you can visit ClinicalTrials.gov and search for 'salivary gland adenoid cystic carcinoma'.
Actionable guidance for navigating care for salivary gland adenoid cystic carcinoma
To navigate your care for salivary gland adenoid cystic carcinoma, it is essential to consult with an oncologist who specializes in head and neck cancers. They can provide tailored treatment options and monitor your condition closely. Additionally, consider participating in clinical trials, which may offer access to cutting-edge therapies. You can find relevant trials at ClinicalTrials.gov. For further support, the National Organization for Rare Disorders (NORD) offers resources for patients with rare diseases at rarediseases.org.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.