A very severe form of acute pulmonary failure secondary to capillary permeability impairment. The symptoms include dyspnea, hypotension and multivisceral failure. The disease is characterized by bilat...
Comprehensive, easy-to-understand information about this condition
How we create this content →Documentation for adult ARDS is limited due to its complexity and the fact that it affects a relatively small population, with a prevalence of 1-5 in 10,000. The lack of identified genetic factors and systematic clinical studies contributes to this gap. Additionally, the condition overlaps with other pulmonary disorders, complicating the characterization of its clinical features.
To navigate adult ARDS effectively, seek specialists such as pulmonologists with expertise in acute respiratory failure. Consider participating in clinical trials to access cutting-edge treatments and contribute to research. You can find relevant trials at ClinicalTrials.gov. Additionally, while there are no specific patient organizations identified, resources like GARD (rarediseases.info.nih.gov) may provide useful information and support. Engaging with a genetic counselor could also be beneficial, especially if there are concerns about familial patterns.
There are several orphan drugs in development for adult ARDS, including calfactant, L-2-oxothiazolidine-4-carboxylic acid, Lucinactant, nitric oxide, perfluorooctyl-bromide (PFOB), rSP-C lung surfactant, and SF-RI-1 bovine surfactant for inhalation. Currently, there are 23 active clinical trials investigating various aspects of the condition. You can explore these trials further at ClinicalTrials.gov: https://clinicaltrials.gov/search?cond=adult%20acute%20respiratory%20distress%20syndrome.
Actionable guidance for navigating care for adult acute respiratory distress syndrome
To navigate adult ARDS effectively, seek specialists such as pulmonologists with expertise in acute respiratory failure. Consider participating in clinical trials to access cutting-edge treatments and contribute to research. You can find relevant trials at ClinicalTrials.gov. Additionally, while there are no specific patient organizations identified, resources like GARD (rarediseases.info.nih.gov) may provide useful information and support. Engaging with a genetic counselor could also be beneficial, especially if there are concerns about familial patterns.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Documentation for adult ARDS is limited due to its complexity and the fact that it affects a relatively small population, with a prevalence of 1-5 in 10,000. The lack of identified genetic factors and systematic clinical studies contributes to this gap. Additionally, the condition overlaps with other pulmonary disorders, complicating the characterization of its clinical features.
To navigate adult ARDS effectively, seek specialists such as pulmonologists with expertise in acute respiratory failure. Consider participating in clinical trials to access cutting-edge treatments and contribute to research. You can find relevant trials at ClinicalTrials.gov. Additionally, while there are no specific patient organizations identified, resources like GARD (rarediseases.info.nih.gov) may provide useful information and support. Engaging with a genetic counselor could also be beneficial, especially if there are concerns about familial patterns.
There are several orphan drugs in development for adult ARDS, including calfactant, L-2-oxothiazolidine-4-carboxylic acid, Lucinactant, nitric oxide, perfluorooctyl-bromide (PFOB), rSP-C lung surfactant, and SF-RI-1 bovine surfactant for inhalation. Currently, there are 23 active clinical trials investigating various aspects of the condition. You can explore these trials further at ClinicalTrials.gov: https://clinicaltrials.gov/search?cond=adult%20acute%20respiratory%20distress%20syndrome.
Actionable guidance for navigating care for adult acute respiratory distress syndrome
To navigate adult ARDS effectively, seek specialists such as pulmonologists with expertise in acute respiratory failure. Consider participating in clinical trials to access cutting-edge treatments and contribute to research. You can find relevant trials at ClinicalTrials.gov. Additionally, while there are no specific patient organizations identified, resources like GARD (rarediseases.info.nih.gov) may provide useful information and support. Engaging with a genetic counselor could also be beneficial, especially if there are concerns about familial patterns.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Documentation for adult ARDS is limited due to its complexity and the fact that it affects a relatively small population, with a prevalence of 1-5 in 10,000. The lack of identified genetic factors and systematic clinical studies contributes to this gap. Additionally, the condition overlaps with other pulmonary disorders, complicating the characterization of its clinical features.
To navigate adult ARDS effectively, seek specialists such as pulmonologists with expertise in acute respiratory failure. Consider participating in clinical trials to access cutting-edge treatments and contribute to research. You can find relevant trials at ClinicalTrials.gov. Additionally, while there are no specific patient organizations identified, resources like GARD (rarediseases.info.nih.gov) may provide useful information and support. Engaging with a genetic counselor could also be beneficial, especially if there are concerns about familial patterns.
There are several orphan drugs in development for adult ARDS, including calfactant, L-2-oxothiazolidine-4-carboxylic acid, Lucinactant, nitric oxide, perfluorooctyl-bromide (PFOB), rSP-C lung surfactant, and SF-RI-1 bovine surfactant for inhalation. Currently, there are 23 active clinical trials investigating various aspects of the condition. You can explore these trials further at ClinicalTrials.gov: https://clinicaltrials.gov/search?cond=adult%20acute%20respiratory%20distress%20syndrome.
Actionable guidance for navigating care for adult acute respiratory distress syndrome
To navigate adult ARDS effectively, seek specialists such as pulmonologists with expertise in acute respiratory failure. Consider participating in clinical trials to access cutting-edge treatments and contribute to research. You can find relevant trials at ClinicalTrials.gov. Additionally, while there are no specific patient organizations identified, resources like GARD (rarediseases.info.nih.gov) may provide useful information and support. Engaging with a genetic counselor could also be beneficial, especially if there are concerns about familial patterns.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Organizations with approved therapies for this disease
No approved therapies yet
Research is ongoing — 7 companies have orphan drug designations for this disease
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.