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alveolar echinococcosis - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

alveolar echinococcosis

MONDO:0017282

Also known as:echinococcosisEchinococcus multilocularis caused disease or disorderEchinococcus multilocularis disease or disorder

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Overview

Alveolar echinococcosis (AE) is a rare parasitic disorder that occurs after ingestion of eggs of Echinococcus multilocularis. AE is characterized by an initial asymptomatic incubation period of many years followed by a chronic course where the clinical manifestations include epigastric pain and jaundice.

Clinical Trials6 registered · 5 recruiting

Clinical Presentation

Built from Human Phenotype Ontology (HPO) phenotype annotations and GeneReviews clinical descriptions. Features represent findings documented across known cases — not an exhaustive list of possible symptoms.

Features include very common findings: Hepatic cysts, Increased total eosinophil count, Elevated erythrocyte sedimentation rate, and Elevated antibody levels (increased circulating immunoglobulin concentration); and common findings: Jaundice, Decreased liver function, Low red blood cell count (anemia), and Fever and others. 50 total HPO annotations.

Organ System	Phenotype Count	Example Features
Digestive system	9

Diagnosis

Biomarker and diagnostic research for alveolar echinococcosis has been reported in the published literature.

Prognosis

Phenotype severity distribution: 4 very common features, 10 common features.

Estimated prevalence: Unknown (Unknown prevalence).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

6 clinical trials registered, 5 recruiting. Interventions under study include procedural interventions, other interventions, and biologic therapy. Pipeline includes 1 EARLY_PHASE1, 2 NA. Research is primarily sponsored by academic and government institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT06612229](https://clinicaltrials.gov/study/NCT06612229)

Data assembled from 5 of 12 sources · Last updated Sep 20, 2026, 4:48 AM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:284

GARD

Genetic and Rare Diseases Info Center

GARD:207

Questions for Your Care Team

→Are any of the 6 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

← Back to All Diseases

Research Type	Count	% of Total
Laboratory research	62	24%
Patient case studies	49	19%
Disease patterns and progression	47	18%
Testing and diagnosis research	35	14%
Research summaries	35	14%
New treatment approaches	15	6%
Clinical study results	9	4%
Other research	5	2%

Kisho

alveolar echinococcosis

Overview

Clinical Presentation

Diagnosis

Prognosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Questions for Your Care Team

Questions for Your Care Team

Explore clinical features

Recent Publications

Latest News & Developments

Pathological Study on Differences in Growth Patterns Between Hepatic Alveolar Echinococcosis and Hepatocellular Carcinoma.

Emergence of alveolar echinococcosis in Canada: a warning for the USA.

Portal vein invasion and cavernous transformation secondary to hepatic echinococcosis successfully managed by TIPS: a case report and literature review.

alveolar echinococcosis

Overview

Clinical Presentation

Diagnosis

Prognosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Explore clinical features

Recent Publications

Latest News & Developments

Pathological Study on Differences in Growth Patterns Between Hepatic Alveolar Echinococcosis and Hepatocellular Carcinoma.

Emergence of alveolar echinococcosis in Canada: a warning for the USA.

Portal vein invasion and cavernous transformation secondary to hepatic echinococcosis successfully managed by TIPS: a case report and literature review.