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opsoclonus-myoclonus syndrome - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

opsoclonus-myoclonus syndrome

MONDO:0015247

Also known as:Ataxo-opso-myoclonus syndromeKinsbourne syndromeOMS

Find Clinical TrialsTrials

Overview

Opsoclonus myoclonus syndrome (OMS) is a rare neuroinflammatory disease of paraneoplastic, parainfectious or idiopathic origin, characterized by opsoclonus, myoclonus, ataxia, and behavioral and sleep disorders.

Clinical Trials1 registered

Patient Orgs2 organizations · Dancing Eye Syndrome Support Trust, OMSLife Foundation

Diagnosis

Biomarker and diagnostic research for opsoclonus-myoclonus syndrome has been reported in the published literature.

Prognosis

Estimated prevalence: Unknown (Unknown prevalence).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

1 clinical trial registered. Interventions under study include drug therapy, other interventions, procedural interventions, and biologic therapy. Pipeline includes 1 PHASE2. Research is primarily sponsored by academic and government institutions.

177 publications have been identified in PubMed for opsoclonus-myoclonus syndrome. Kisho has analyzed 72 by research type. Research spans Review / Meta-Analysis (38%), Case Report / Case Series (38%), and Epidemiology / Natural History (10%).

Research Type	Count	% of Total
Research summaries	27

Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 2:54 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Patient Advocacy Groups

View all PAGs →

Dancing Eye Syndrome Support TrustPrimary Focus

USWebsite ↗

OMSLife FoundationPrimary Focus

USWebsite ↗

Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.

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Medical References

External Resources

Orphanet

European rare disease database

Orphanet:1183

GARD

Genetic and Rare Diseases Info Center

GARD:10009

Questions for Your Care Team

→Are any of the 1 active clinical trial a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→How can I connect with Dancing Eye Syndrome Support Trust and other patient organizations for support?

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opsoclonus-myoclonus syndrome

Overview

Diagnosis

Prognosis

Research Landscape

Patient Support

Patient Advocacy Groups

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

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