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reversible cerebral vasoconstriction syndrome (RCVS) - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

reversible cerebral vasoconstriction syndrome

MONDO:0017291

Also known as:RCVS

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Overview

Reversible cerebral vasoconstriction syndrome (RCVS) is an infrequent cerebrovascular disorder characterized by severe headaches with or without focal neurological deficits or seizures, and a reversible segmental and multifocal vasoconstriction of cerebral arteries.

Clinical Trials2 registered

Diagnosis

Biomarker and diagnostic research for reversible cerebral vasoconstriction syndrome has been reported in the published literature.

Prognosis

Estimated prevalence: Unknown (Unknown prevalence).

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

2 clinical trials registered. Interventions under study include other interventions. Pipeline includes 1 NA. Research is primarily sponsored by academic and government institutions.

128 publications have been identified in PubMed for reversible cerebral vasoconstriction syndrome. Research spans Case Report / Case Series (55%), Review / Meta-Analysis (23%), and Epidemiology / Natural History (13%).

Research Type	Count	% of Total
Patient case studies	70

Data assembled from 4 of 12 sources · Last updated Sep 19, 2026, 6:55 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Medical References

External Resources

Orphanet

European rare disease database

Orphanet:284388

GARD

Genetic and Rare Diseases Info Center

GARD:12768

Questions for Your Care Team

→Are any of the 2 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

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reversible cerebral vasoconstriction syndrome

Overview

Diagnosis

Prognosis

Research Landscape

Medical References

External Resources

Orphanet

GARD

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

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