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thyroid cancer, nonmedullary, 1 - Clinical Profile, Genes & Research | Kisho | Kisho

Rare Disease

thyroid cancer, nonmedullary, 1

MONDO:0008567

Also known as:thyroid cancer, nonmedullary, type 1NMTC1familial nonmedullary thyroid cancer, papillary

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Overview

GeneticsAutosomal dominant

Clinical Trials8 registered · 2 recruiting

Clinical Presentation

Features include: Papillary thyroid carcinoma, Non-medullary thyroid carcinoma, and Goiter.

Organ System	Phenotype Count	Example Features
Hormones	2	Papillary thyroid carcinoma, Non-medullary thyroid carcinoma

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Diagnosis

Biomarker and diagnostic research for thyroid cancer, nonmedullary, 1 has been reported in the published literature.

Research Landscape

Sourced from ClinicalTrials.gov and PubMed. Publication types are classified using NLM-curated article metadata; research type breakdowns reflect the nature of published work for this disease.

8 clinical trials registered, 2 recruiting. Interventions under study include other interventions, procedural interventions, drug therapy, and medical devices. Pipeline includes 2 PHASE2, 4 NA. Research is primarily sponsored by academic and government institutions.

NCT ID	Title	Phase	Sponsor	Status
[NCT07033572](https://clinicaltrials.gov/study/NCT07033572)

Data assembled from 5 of 12 sources · Last updated Sep 19, 2026, 4:32 PM UTC

MONDOHPOClinicalTrials.govFDAPubMedHGNCClinVarClinGenGeneReviewsOrphanetOMIMRUSP

Patient Support

Financial & Access Support (External Programs)

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Medullary Thyroid Cancer Program

Premium/CopayClosedOperated by Good Days

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Medical References

External Resources

OMIM

Online Mendelian Inheritance in Man

OMIM:188550

Questions for Your Care Team

→Are any of the 8 active clinical trials a good fit for my situation?
→Are there specialists or centers of excellence for this condition in my area?
→Is there a patient registry I should consider joining?

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Research Type	Count	% of Total
Laboratory research	75	33%
Disease patterns and progression	44	19%
Testing and diagnosis research	34	15%
Research summaries	34	15%
Clinical study results	25	11%
New treatment approaches	7	3%
Patient case studies	6	3%
Other research	2	1%

thyroid cancer, nonmedullary, 1

Overview

Clinical Presentation

Explore clinical features

Diagnosis

Research Landscape

Patient Support

Financial & Access Support (External Programs)

Are you a patient organization for this condition?

Medical References

External Resources

OMIM

Related Diseases

Questions for Your Care Team

Questions for Your Care Team

Recent Publications